After my diagnosis last Thursday I'm starting to get a handle on it, pulled my big brave pants up and did some research and the key is to get this lymph node shrunk,it's deep in my stomach it is doable I think they more concerned about me tolerating it and finishing it off or it finishing me off .
I haven't heard yet from the oncology consultant and I'm worried it's spreading or getting bigger while I'm waiting.
Do you think I should contact his secretary?
I feel really well right now gained 10kg jn weight eating like mad and basically getting on with normal life.
It's lovely I can come on here and chat away my thoughts and once I get onto that chemo train again I'll be needing all the support I can get
Great to read this HazG you sound much better and in a short time too .
I absolutely would email them . Is there a radiotherapy option for it ?
You are always welcome on here. I think it actually is therapy in itself and sometimes people need somewhere away from family so they can say what’s on their minds .
Take care ,
Court
Helpline Number 0808 808 0000
HI HagZ, I know aboutvthe waiting, I've been waiting since my first colonoscopy on the 11th June, and still I'm waiting, it's a bad rime with kids off school, summer holidays, I'm hoping to hear something in the next week, my little islands shrinking and sharks are circling it, I just want something to start, as like you I keep thinking it could be growing, fingers crossed you hear something soon.
Hi Treetops, nothing today, I've been chasing ny tail trying to get info out of people, I rang the colorectal team at the local hospital, who basically said to don't bother us now, you're being treated by Manchester, I badgered the local consultants secretary, and 5 mins later I had a call from Manchester, they've had a cancellation and want to do a sigmoidoscopy on Wednesday, so I'm hoping it's the surgeon who will see if I can havethe TEMS op, if not, I'm not sure what will happen, if illbe referred back to local hospital for the big op, I have done a lot of twiddling of my thumbs, and worrying, I'm glad somethings happening, but worried I'll be referred somewhere else and if so, how long that takes. Good luck for Wednesday xx
Imbit sure what everyone's read that I'm having something done today, I'm not I've been chasing people up, I've been waiting for 3 weeks to see what Manchester came up with, I badgered my local consultant and colorectal nurse and then I got a call from Manchester and having a sigmoidoscopy on Wednesday, hoping then they'll start some sort of treatment. I've had a hellish week and this weekend I finally broke down and sobbed, in pain, passing blood,worried, not sleeping all finally got to me. Thansk for the thought though xx
Confusion over dates. Never mind lots of support coming through here. Sorry to hear you had such a rotten week and weekend. I guess all of the unknown just hits us like a brick wall.
So let’s both keep our fingers crossed for helpful news on Wednesday we can compare notes later.
Trea xx
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