I'm so upset

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I went to see my consultant surgeon today and he delivered the news that its spread to three places I have a deep lymph node in my tummy I have a spot on my liver and one in my pelvis low down apparently,.

To say I'm distraught is an understatement I have to go back onto chemo to attack this lymph node and the other spots.

Now me and chemo don't get on but the oncologist remembers me so he's asked for the markers from 2021 and he's going to look at other combination of chemo, the main  thing is I've got to get through it otherwise I don't think there's much hope its going to be extremely hard especially when you know what's coming.

He told me to remain positive its caught early and my cea is only 10.4 he said he woukd normally expect it to be in the 100s.

He's also contacted Basingstoke to be considered for a washout and liver resection,but they won't do that untill I've had chemo.

So we've all had a good cry and now I've got my positive pants on 

On a more positive note my daughter got her job today for Virginia Atlantic. So my aim is to see her get her wings.

Thanks for bearing with me and my long post. Heart 

  • Oh so sorry to read this 
    I remember how you struggled on chemotherapy and can see why you are apprehensive, my mum had emergency admissions the first year but the second time they made some adjustments that actually worked and it was much better than the first year so hopefully your team are doing the same .

    Your consultant clearly has a long term plan in mind and sees you having a low tumour burden with a surgical option .

    Now to get you through the chemotherapy , we are here and supporting you every step of the way .

    Congratulations to your daughter . That’s your first goal , now for many more .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Sorry to hear this . But we are hear for you .  might have some insight which you might find helpful .


    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • HazG

    What horrible news after all you’ve been through. I’ve read your bio   You’ve been through so much this is awful news to hear however it sounds like they have a plan so best foot forward  

    I love that you have had your cry and now have your positive pants on. That’s a great way to thinK I  always say big girl pants  I really don’t know where that came from 

    Congrats on your daughter getting her new job. That’s a really good company  

    I just wanted to send you a hug 

    Ann
     ‍Art

  • I’ve replied to Neil on his post 

    Sarah xx


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  • Yikes, not even the right thread ! Sorry 

    But thank you ,

    Court 

    Helpline Number 0808 808 0000

  • https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/diagnosis/243352/late-diagnosis

    This is posters thread that mentioned it . I honestly don’t know much about it and I assume it’s private but our helpline staff will have heard of it as it will be discussed across the board .

    0808 808 0000

    If you find out let us know .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • I think there is something either wrong with my phone or me ! As it’s happened again . I will try again .

    Court 

    Helpline Number 0808 808 0000

  • Just came out from my CT scan to read this. Disappointed

    Unfortunately your intuition was bang on. At least your consultant feels it’s still being caught early and you can throw everything at it as best as you are able. That’s all any of us can do. Keep pulling those big girls pants on.
    Wonderful news re your daughter something positive to focus on. 

    Parky Purple heart 

  • Thanks Court, I'm trying to remain positive Slight smile 

    Where there's a will there's a way ! 

    I just can't get my head around two clear scans one only ten weeks ago and nothing picked up on it good job he decided to pet scan me as he new something wasn't adding up.

    Xx

  • The scans have saved my mum’s life twice now . A necessary evil I call them .

    Its fresh news so you need time to let it sink in and start preparing yourself for the next step in this process .

    There are some pretty good surgical teams out there !

    Thinking of you .

    Court 

    Helpline Number 0808 808 0000