On the 11th of June I had 1st colonoscopy, told then I had cancer, since then I've had CT and MRI scans, and another colonoscopy, now my files been sent to Manchester, last week, told I wouldn't hear anything for 2 weeks, I've been ok til a few days ago, now my little island isn't just getting smaller, it's sinking. My 2 main supports are both having a hard time coming to terms with the diagnosis, which is T2 cancer, through the wall of the bowel, but only 4cm into my bottom, I have no treatment plan, my consultants on holiday, I've spoken to the colorectal nurse, she's been very nice, but I'm starting to crumble and I can't do it in front of my other half as he told the consultant he was terrified, he's my ex husband, current partner, we can't live without each other, but not in the same house, so he lives in the flat below mine, so at least he can escape. He seems to disappear when I have a call back from the colorectal nurses, or the nurse who gave me an exercise plan, I wish he'd stay, in case I forget to ask something, but I know he's crumbling, as is my sister I have friends, but they're just worried about the outcome, not about how to support me, but I can't do it alone, if I knew a plan I'd be better, but all I'm doing is reading things and that's not good, as we all know some things out there are horrific. I don't know what to do, I only shed a tear yesterday, bawled into my long haired cat, she didn't mind, well, she didn't bite me anyway! I'm sorry to be a Debbie downer, but I'm sinking and I don't know what to do, the stomach cramps are so bad after I've eaten, I'm down to one meal a day, other half cooks, makes sure I have at least one decent meal a day. I can't even get a call back from my GP, which isn't unusual, but you'd have thought they may have at least called me when I asked for an urgent appt, 2 weeks I have 2 wait for GP. I'm lost, drowning in facts and figures, no treatment plan, and waiting for someone I dont know, to get back to either me or my local hospital to see ufcthy can do the op up my bum, instead of them going through my stomach. I apologise to all those of you who have worse cancer than me, who need support, I thought it may help to get some of it out onto here. I don't really expect anyone to answer, but I do feel a but better to get it out, maybe I should start a journal,
It’s disgusting.Do you think it’s about time to make it formal. I’ve found the Manchester form and copied the link below
Is that the appropriate contact? it’s ridiculous that you are living with the stress The hardest part I found was the waiting knowing that the cancer is there its unbearable I also had pain and discharge which was worse with stress
I hope that you have a treatment plan soon
I had my colonoscopy early June 2021 and then CT scan, MRI scan then Endoscopy, consult with surgeon and six hour operation on 4th August 2021.
Ann
