On the 11th of June I had 1st colonoscopy, told then I had cancer, since then I've had CT and MRI scans, and another colonoscopy, now my files been sent to Manchester, last week, told I wouldn't hear anything for 2 weeks, I've been ok til a few days ago, now my little island isn't just getting smaller, it's sinking. My 2 main supports are both having a hard time coming to terms with the diagnosis, which is T2 cancer, through the wall of the bowel, but only 4cm into my bottom, I have no treatment plan, my consultants on holiday, I've spoken to the colorectal nurse, she's been very nice, but I'm starting to crumble and I can't do it in front of my other half as he told the consultant he was terrified, he's my ex husband, current partner, we can't live without each other, but not in the same house, so he lives in the flat below mine, so at least he can escape. He seems to disappear when I have a call back from the colorectal nurses, or the nurse who gave me an exercise plan, I wish he'd stay, in case I forget to ask something, but I know he's crumbling, as is my sister I have friends, but they're just worried about the outcome, not about how to support me, but I can't do it alone, if I knew a plan I'd be better, but all I'm doing is reading things and that's not good, as we all know some things out there are horrific. I don't know what to do, I only shed a tear yesterday, bawled into my long haired cat, she didn't mind, well, she didn't bite me anyway! I'm sorry to be a Debbie downer, but I'm sinking and I don't know what to do, the stomach cramps are so bad after I've eaten, I'm down to one meal a day, other half cooks, makes sure I have at least one decent meal a day. I can't even get a call back from my GP, which isn't unusual, but you'd have thought they may have at least called me when I asked for an urgent appt, 2 weeks I have 2 wait for GP. I'm lost, drowning in facts and figures, no treatment plan, and waiting for someone I dont know, to get back to either me or my local hospital to see ufcthy can do the op up my bum, instead of them going through my stomach. I apologise to all those of you who have worse cancer than me, who need support, I thought it may help to get some of it out onto here. I don't really expect anyone to answer, but I do feel a but better to get it out, maybe I should start a journal,
Hi Miss T
Im sorry that you have no plan. I found that the hardest part.
I hope that you have had some support from MacMillan, well done Court you’re a Star
I just wanted to say that I couldn’t eat either so I had two meal supplement drinks a day with three small meals/snacks. High protein. That really gave me the boost I needed to exercise.
sending you a hug
Ann
Thanks Court, I feel a little better,but its not knowing that isn't helping, qnd those around me don't want to "go deep", I take an 87 Yr old lady out on Wednesdays, she was my great aunts best friend, they did everything together, lived next door to each other, ivspent most of my weekends and school holidays with them, she's the only one that's able to give me a chance to talk freely, we went on a 40 mile drive in the countryside today, my anubtche Joan worked in a nursing home, I grew up there helping, and went on to be a carer, she's able to make me laugh, cry and kick my backside if need be. But support on here helps too.
I found waiting for the treatment plan the hardest. The tests were tick boxes. The last endoscopy was on a Monday and I was told they wouldn’t have all the team to discuss my case for two weeks as the oncologist wasn’t there. That made my mind whirl. After a few days of my mind on overdrive I phoned my colorectal nurse Anneka and said that I wanted to book a holiday and wondered if she had any advice
She told me what was in store and gave me their website to get the info.
Although I was stunned I knew what to read up on and not to book a holiday. Truth be told I wasn’t going on holiday. I was in limbo and needed to know
I felt so much better knowing that. You could phone your colorectal nurse again and ask if your consultant is back and they’ve had their MDT as you would like a holiday.
It worked for me
Take care
Ann
My consultant was in the hospital last Tuesday, and was away for 2 weeks, I don't know if this is the 1st week or not, I did talk to my colorectal nurse on Monday, Faye was very good, but I'm in limbo until the people at Manchester get back to us, my file was sent last Tuesday, so a week and a day ago, I don't know if they're calling me, writing to me or just going back to the hospital near me. I'm a but annoyed, qs out local hospital has just had q brand spanking new Christine's unit built, but the one piece of equipment that they need to look at how far the tumor is through the wall of the bowel, they haven't got, it's an ultrasound with probably some sort of problem, that the people in Manchester have. My GPS are booked up for weeks, I don't know who or where to turn, I'm trying to stop Steve from sinking into a black hole, and trying to reassure my hypochondriac sister that she probably hasn't got cancer, though she's been diagnosed with irritable bowel disease, and had a colonoscopy not long ago. I don't know what to do, think, or where to turn, I just want to know when something will happen, I was 2ith my fiends through her journey with cancer, though hers was so invasive, and everywhere, she smoke 60 a day for 45 years, I know when they said about chemo giving her an extra few months, she only had 2 sessions, then died the say before her 3rd, it knocked her around alot I doubt she'd have gone for the 3rd session anyway. My small islands getting smaller. But people on here have been so good, qnd I know many have their own struggles, I feel so bad when I'm here whinging, when others are clearly worse off than me.
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