Me again about kras

6 replies
127 subscribers
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Hi all,

has anyone heard of cancer trials for the KRAS gene, trying to get some insight or info before next onc appointment

or has anyone got the KRAS gene and what’s your treatment

my onc referred me to some place in London they have no trials so going to ring and ask some centres myself

again my specialist nurse made it sound like the end of the road but surely trials come up at different times and not all hope is lost

also anyone know how much to self fund avastin again my onc kinda dismissed me but I need to know

hope everyone ok in this wicked heat

thankyou

bud

xxxx

Kareno62 over 2 years ago

Hi Bud 18. I’ve done a quick search on here and most of the posts are quite old. Do you ever post on the Bowel cancer uk board? There’s quite a few posts on there about KRAS. I think the cost of Avastin can vary hugely from area to area so you could post on there and see if anyone local to you has priced it up? I’ve also attached a link to the cancer research site about trials if you’ve not seen if already x

www.cancerresearchuk.org/.../clinical-trials-search

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

Bud 18 over 2 years ago in reply to Kareno62

Thankyou so much will look now. Yeah I on bowel c uk they all great to xxx

Xxxxx

Bud 18

court over 2 years ago in reply to Bud 18

https://www.christie.nhs.uk/about-us/news-at-the-christie/latest-news-stories/cancer-patient-s-remarkable-recovery-after-first-dose-of-experimental-new-drug

Not sure if this is applicable or even still open but worth a read !

Court

Helpline Number 0808 808 0000

Bud 18 over 2 years ago in reply to court

Thanks court that sounds amazing Thankyou , I need to keep positive having a wobbly I think xxxx

Xxxxx

Bud 18

court over 2 years ago in reply to Bud 18

You are allowed a wobble . You have been through a lot !
Hope you get a good rest .

Court

Helpline Number 0808 808 0000

Caz999 over 2 years ago

Hi I have the kras mutation and am stage 3 colorectal.

My oncologist just said after chemo there's nothing else they can offer and said my only option is surgical surveillance. I've not found any specific treatment for kras mutation x