Tummy Pain

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Hi Everyone!

I'm on to ask if stomach pain in recurrant bowel cancer is bad. To let you understand I take `blackouts` like fainting spells I think I mentioned here that I have the condition Tuberous Sclerosis Complex. I've put it down to that and when I get really anxious like I have been now I tend to have one of these blackouts. I had one earlier on when I was in our bedroom and ended up lying half way under our bed the way I went down. I couldn't hear Jay shouting on me and he got in a really bad state because he tried to bend down to pull me out and he ended up with a really sharp pain in his stomach he said like he had never felt before. When I eventually did come round he was sitting on the bed `breaking his heart` (crying) because he says he feels so useless now that he can't help me with this anymore and thought he was going to have to phone the police or ambulance service to bring me round. He is fine now but said he doesn't know if he's tore something inside. He has a hernia also so I don't know if its to do with that. He says if he sees any blood in his pee he may have to go to hospital because he doesn't want to take any chances and that he will need to keep an eye on it. He seems as I said ok now but I now can't help feeling guilty that I caused it and keep saying `sorry` to him all the time and the least wee movement he makes I'm asking if he's ok. I was sent to a care centre a couple of years with this because I had epilepsy years ago and the specialists thought it was that that was coming back and I had to spend 4 weeks going through tests. It turned out it wasn't epilepsy but still a type of seizure called disassociative or psychogenic seizures basically they're seizures that can be brought on by anxiety and stress and it's a condition called NEAD (Non Epiletic Attack Disorder). So we're an absolute pair!! I cried too and he cried and then we just hugged one another for a little while and felt better after it. I think once we find out what the oncologist has to say next week we can move on from this and get his treatment started it's just the waiting.

  • Hi PattyK

    Im sorry that you are both going through this it’s frightening for one terrifying for two. 


    Whilst I was in limbo waiting for results my husband displayed all the symptoms of Parkinson’s. I didn’t see it. I thought he seemed cross! This antagonist my stress levels as the Parkinson’s mask is unsympathetic and my hubby was the most expressive face I knew. My daughter recognised it then I was rushed through and treated, my hubby ignored, abandoned owing to the Covid excuse 

    We stand together and support each other and I pushed for his diagnosis  

    Hold each other and you’ll get through this. 
    I’ll be thinking of you two.
    Take care and enjoy things you like doing. 

    Ann
     ‍Art

  • I be thinking of you keep us updated with his treatment plan there’s amazing support and advice here. 

    Ann
     ‍Art

  • Will do Artsie. Thanks againHeart