PIP help?

Sorry cant help.but just wondering,I was told that I had to be 5 yrs clear before they would say I was in remission.Is everywhere different?I hadnt thought of it before,now I am starting to wonder.

Kath

You know, that actually rings a bell? I think I must have it muddled up or misunderstood what they told me at the time. Since diagnosis I cannot retain information, I get confused easily and I get things mixed up. My brain has probably picked a bit of the conversation up and decided that's gospel. Thanks for your comment x

I put cancer as one condition on mine even though it was successfully removed 2 years ago, and concentrated on the effects on my life since. My doctors don’t use the word remission until 5 years clear so that wasn’t something I mentioned. Some people say there’re in remission after a clear scan 3 months post treatment with my cancer, but my doctors would never use that term. I’ve only recently put in a pip application so still waiting to hear, but used cancer and my original diagnosis date in 2018 as my starting point.

Sarah xx

This is very useful, thank you so much! 

Hi Jen988. You could give the support line a ring - the number is on Sarah’s post and I’m sure they’d be able to talk you through the best way of filling the form in x

Thank you, I didn't know if this was something they could help with so just wanted to see if anyone on the forum could help. All sorted now, but definitely something to remember further on down the line x

Hi Jen988,

Sorry this is such a late reply but just to set your mind at rest, a PIP review is standard and does not mean they are thinking of cutting you off. You should put your illness as cancer,  as remission is not the same as cancer free and you are having ongoing tests. I'm sure your illness has affected your ability to perform routine daily living tasks and that is what PIP is for. The World Health Authority has classified cancer as a disability so don't be put off.

PIP reviews tend to take ages to review so you may not get a decision for a while but they still pay you. If for any reason they decide to withdraw it, ask in writing for that decision to be reviewed then a different, more senior adjudicator will review the original decision. It's something I feel strongly about as the last thing people in our position need is the worry of having our income removed. Just remember to describe your abilities when you are at your worst.

Good luck with it!

Hi Jen988,

Sorry this is such a late reply but just to set your mind at rest, a PIP review is standard and does not mean they are thinking of cutting you off. You should put your illness as cancer,  as remission is not the same as cancer free and you are having ongoing tests. I'm sure your illness has affected your ability to perform routine daily living tasks and that is what PIP is for. The World Health Authority has classified cancer as a disability so don't be put off.

PIP reviews tend to take ages to review so you may not get a decision for a while but they still pay you. If for any reason they decide to withdraw it, ask in writing for that decision to be reviewed then a different, more senior adjudicator will review the original decision. It's something I feel strongly about as the last thing people in our position need is the worry of having our income removed. Just remember to describe your abilities when you are at your worst.

Good luck with it!