Post Chemo Scan Results

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So last week we went to see the oncologist for Tony's first post chemo scan results only to be told they hadn't been discussed..fast forward to today and we get a phone call to come in and see the oncologist on Friday face to face..to say our anxiety levels are off the scale would be an understatement... I have managed to speak to the colorectal nurses who have said to try and not be too alarmed in that they want to possibly do another pet scan to clarify something they are unsure of on his liver and blood tests...she said this is part of surveillance and regular scans with additional scans if required..to be honest I feel even more worried now...it obviously wasn't completely clear as clear is clear isn't it...how are we going to get through the next two days...xx

I feel something must have showed up on that CT scan and I just can't help but panicked by it..the nurse didn't really reassure me at all really although she tried to so we have been plunged into such anxiety I can't honestly think straight...

Kareno62 over 3 years ago

Hi ellen93. Scanxiety is horrible isn’t it but unfortunately it’s part and parcel of the follow up emotions. Please try not to read anything into the face to face - a lot of hospital appointments are back to being face to face. The liver often has harmless cysts detected in it and if this hadn’t been noticed or has appeared since previous scans then they will want to investigate it further.
If it does turn out to be something sinister then it’s been caught very early and can be dealt with.

Please try not to assume the worst or you won’t be in a condition to take in fridays meeting. Wednesday is nearly over then you’ve only Thursday to get through before it’s Friday.
Please let us know how it goes?

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

ellen93 over 3 years ago in reply to Kareno62

Kareno62 Thank you Karen..it is so hard..I'm struggling today trying to keep a handle on the anxiety..I haven't really told Tony what the nurse said about a further scan and blood tests as I didn't want him to worry as well so it's hard...I know I can't know for sure what the oncogist will say tomorrow but I feel its not going to quite as we had hoped...this sounds very negative doesn't it so I'm also feeling ashamed at myself..

Kareno62 over 3 years ago in reply to ellen93

Please don’t feel ashamed ellen93. You’ve got a lot to shoulder at the moment and it’s hard keeping things from your other half when they’re normally the first one that you would turn to? It’s hard to put on a positive front all the time - have you considered ringing the support team on here just for a chat and off-load? They’re available 7 days a week from 8-8 on 0808 808 00 00 and a few of the people on the board have found them really helpful when dealing with the anxiety side.

Will be thinking about you both tomorrow x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm