Stopping Capaceptabine

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Hi Everyone

After a four week break from Capaceptabine due to toxivity I restarted at a lowered dose last week. Within two days the symptoms returned - chronic diarrhoea even with 8 loperamide a day, very sore and bleeding feet sore hands nausea despite domperidome etc

The dr I saw (briefly) at my face to face last week said there was only a 10% chance the capaceptabine would work anyway, yet at the time I still wanted to continue at a reduced amount. However after the resuming of symptoms I have decided no more. I have actually already started to feel better and in myself am happy about my decision. I completed three courses, sho klows if they will have done any good?

I just wondered if anyone else has had a similar experience and any advice re check ups etc and what to be aware of should the cancer decide to retur (not that I actually think it i going to happen!) I was given the chemo pills as a precaution after my bowel tumour was removed, my diagnosis was T3N0M0 but had positive results for the capillaries around the site the tumour was removed.

Many thanks.

court over 3 years ago

I would not underestimate what three rounds of treatment can achieve LizzieJo. Given some research supports four rounds it is not so far off it .
I am glad you are comfortable with your decision . It might surprise you to know my mum has never had post op chemo to manage a stage 4 diagnosis . None after her largest liver resection back in 2010 , so far so good . None after her lung resection in 2016 ! Both still clear !

She had no symptoms of any recurrence. It was all picked up on the scan .

If you want to know the scanning protocol you can check it out through the Nice Guidelines for colorectal cancer . My mum had a bit more as she was stage 4 but a robust scanning protocol and CEA checks stood her in good stead .

Take care ,

Court

Helpline Number 0808 808 0000

Gemmary over 3 years ago

You have given it everything, so you can never say you didn't try your best. I'm glad you are comfy with your decision. My diagnosis was the same T3N0 V1M0 (they add the V1 for the vascular involvement) and I had adjuvant chemo but by IV rather than tablets. My mantra was just one more, and if it had to stop, so be it. I have had 2 clear yearly scans since treatment finished, so maybe that gives you some hope. All the very best, xx