Treatment

Hi Jospongebob, I had chemo weekly for 30 weeks, 5FU and LC. But it depends which chemo you will have. Click my name if you want more info, but basically I could just about work throughout. All the best for tomorrow.

Hi Jospongebob

as Gemmary  has said it’s most likely 5FU and LC (LV)   That’s the only one I know of that’s weekly for 30weeks  again you can click on my profile but I’m almost on week 20/30.  (Tuesday 26th April) 

thry had to reduce my dose very early on as liver doesn’t like it but I’m stable at 88% instead of 100%. Gemmary you said you were reduced what was your reduction do you remember? 
the regime says a 5 minute infusion ( which it is) except I am usually in 90mins by the time the get the cannula in ( consider a PICC line) give the antiE and Dex wait 30mins to the LV then 5min 5FU and flush 

I feel a little nauseous at 24-48hrs (but not enough to take extra meds) and after that it’s fine. My skin is starting to take a while to heal (mozzie bites etc). But the good news I’m still working 28-30hrs  a week and playing golf 1-2x a week, we have also been doing a lot of patio renovating over past 3months too. So whilst it affects everyone differently it is possible to function pretty normally !!  Fatigue is now just starting to be an issue in the evenings 
Gemmary . I’m soooooo close to the final 10 !!  YAY !! My weekly  Just one more mantra starting to kick in !! 
xx 

Hi, Jospongebob, how did today go? All very strange and scary, but hopefully ok.

Parky2170 yey, well done you!!! Yes that mantra helps hugely!!

Hi parky2170 ,

The treatment they have told me I'm having is Xerox ( capox) a mixture of iv and tablets ,

The treatment will start in 2wks ,The course is 8 cycles of 1 day oxaliplatin iv then capecitabine tablets the evening of day 1 to the morning of day 15 and then have a rest period of 7days , it sounds good to me as I only have one day at the hospital and the rest tablets at home ,

There is so much to take in and then you have the list of possible side effects that there are , 

I was hoping to be able to carry on working but because of the job I do the doctors have sed I can't work which is a bit of a blow but I guess they know best , 

Sounds like you have managed to carry on practically normal which is great , you have come so far and bein positive is definitely a big plus I think 

Thank you for the help 

Hi Gemma Ryan,

It went really well I will be have 8 cycles over 6months of Xerox (capox) 

Day 1 iv of oxaliplatin then start taking capacitabine on the evening of day 1 and there after until the morning of day 15 then I get 7days of rest and start the cycle again , it sounds good to me but yes so much to take in and reading all the side effects is pretty scary not knowing how it's goin to make you feel , but I'm very positive ,

Thank you for all your help its nice to know we are all not alone