Melt down update

Your GP may share the same clinical portal and be able to give you the CEA reading . Especially if they actioned it . 

Our helpline nurses might have some advice on the Contrast issues .

0808 808 0000

Hope it goes well for you .

Court 

Hi I but the bullet and rang my surgeon he said my CEA level is marginally elevated nothing to worry about,I'm due a scan in November but he said he will request o days in a few weeks as precaution.

Feel a bit happier now phew  

Oh that’s much more reassuring indeed. Actually you have a wonderful team that they care at that level despite the added pressure they must be under .

Hopefully all will be well . Once we got a better feel for how my mum’s CEAs it took some of the fear away. 

Hope you had a better day today .

Court 

Apparently my levels were 10.3 before surgery 

Feb after surgery 5.8

June 2021 8.1

April 22 8.1

So he said its not changed and some people do run on a high level.

So fingers crossed it is nothing to worry about gish this just never leaves does it there I was getting on lovely with my life feeling great and one thing sets you right back.

Thanks for the support Court

So it’s up 2.3 from your base line . Had that gone from 2 to 4.3 it would not have been flagged so it really does help to get a finger on what is normal for you . However great they are being very thorough .

My mum’s is strange to be honest . Hardly elevated despite a significant spread , at its highest ever on chemo . When she has no active cancer it naturally sits a bit higher anyway , elevated slightly as she gets older and has spikes which resolve themselves in the summer . We just had to give up the anxiety they caused as they did not always reflect the evidence of the scans . Which went from significant disease , to significant shrinkage . Nothing to be seen despite a spike . Her CEA never reflected that accurately. 

Nothing causes an anxiety spike like CEA can .

All the very best with the scan and great your surgeon was so accessible and helpful . Do encouraged to hear that .

Court 

Consultant is going to get CT done without contrast if it doest show images required then I'll have to have an mri aswell because I don't react to that contrast.

I'm such a delicate flower  

That’s helpful . Think my mum had to give up in contrast too . Very sick afterwards . Must ask her .

Take care ,

Court