Went in for my Covid swob and blood tests last Wednesday. Saw my oncologist face to face and he was quite positive. I’d been having pain in a port site, had my op back in November, thought I had a hernia, so I thought another one I’ve got to live with . So I just left it.Thursday pain really got worse, went to GP, She said not a hernia but an abscess. She gave me a letter to go to A&E. That is where I’ve been since, that is in the hospital not still A&E. I’ve had to have it drained , I’m on iv antibiotics. One of the oncologist come over to see me to tell me they will give me my last chemo, said it will be discussed. I’m under the UCLH so The Macmillan centre is just over the road. Has anyone had their chemo stopped because of infection, does anyone know how long in between having an infection and continuing with chemo can you wait? I was only out of hospital a week after a 10day stay to check my heart was ok and could carry on with chemo. Just want to get it over with , he did say he was going to reduce the dose.
Hi Nelly1955
No wonder you have not been feeling so good ! Glad you are getting that attended to .
Might be one to ask our helpline staff . From observation people do seem to get port infections etc and can be off for a fair bit before resuming treatment.
Take care ,
Court
Helpline Number 0808 808 0000
Awwww Nelly that’s not good. Naughty girl for ignoring the pain !
I reckon 7-10days to get the infection down then they should reconsider your chemo. The ABs could mess with your liver function which they would need to factor in ( although the infection would too )
If you only end up with one reduced dose you have done well. They may drop it to 75-85%. Better that than stop early. I had round 16/30 yesterday and that’s been at a mixed reduced dose ranging from 84-92% and 88% seems to be my ‘happy place ;). since my second round as my LFTs deranged very early on !
soldier on you will get there xx
Hi Court, and Parky 2170, thank you for your replies. My daughter said she can’t believe it wasn’t picked up in any of my blood tests. I was in hospital for 10 days and out a week before I was back in with this. I still have the infection, the wound is quite deep and has to be packed. I’m hoping I can go home today with the district nurse come out to dress it. The dr. Mentioned a vac pump of which I had before I hope this is not going to happen and the antibiotics do the job. I have been taken off iv because the cannula blown, my veins seem none exsistent at the moment, unable to get blood yesterday. So I’m on oral antibiotics. The oncologist had me in last Wednesday and seemed optimistic, I still feel frightened to let myself believe that at the moment it is clear. I’ve had to have ct scans chest last time I was in and abdomen this time I’m in and they say they don’t see any cancer. Court I always read about your mum and you always thought the chemo finally got rid of it, not sure you put it in that way but is that what is meant? They just keep saying the adjuvant chemo is the belts and braces. So here’s to my last chemo whenever it happens. You are over half way through Parky, I think you are an inspiration how you just carry on. and Court your mum has been an inspiration for people on this site. Sending hugs xx
Hi Nelly1955
I feel the chemo played a big part in her overall survival as she was inoperable but was a super responder to chemo which in turn got her to surgery . I think in cancer care surgery is actually the golden bullet for achieving the cure but chemo got her to the surgeons table . It was for her a life saver as it was chemo that shrunk it to the point the surgeons could get to work. So it played a big role . Technically it would be the surgeon that brought about the last stay in the process that lead to the cure . But I will never forget what was achieved by chemo and hopefully it did some damage to any micro disease but we will never know that aspect .
It is amazing that never showed up in the hospital . Good job your GP was on top of that ! My mum’s veins are the same but you will get there and hopefully the oral antibiotics will do the same work.
Great news on the scanning front . My mum actually never had post op chemo . They were always saving it for a recurrence!
I love reading your posts . Clearly your field but love that you know exactly the dose that works best for you ! I could only ever say a slight reduction but still it amazed me the difference that made to being able to sustain taking chemo and being flat out with it . It’s so encouraging for others to read that !
Keep up the good work . Just shows people the work that can be done by the team to balance things out !
We had a lovely warm spell … gone now !
Have a great day . Court
Helpline Number 0808 808 0000
Hi Court, thank you for your reply. When I went in to sign the consent form he did say do you want to put your body through this. I just thought he didn’t think much point. How fantastic your mum didn’t have a recurrence. I’m just praying like others on here that this treatment will work . Xx
Thnx Gemmary I nearly tagged you in at the half way point as you gave me very positive advice and encouragement early on and I keep thinking of your mantra ‘ just one more ‘ I can’t wait to get to round 20 and start that final 10 countdown ….. not long now and it sound silly but my appt card is nearly full and I’ll need a new one soon
definately still living my full life although def more tired by evenings but that might be cos hubby getting up 5am each morning atm for a new job contract so losing 2hrs sleep a night might not help.
interesting no peeling of hands and feet but very red face after golf even with sunblock … but always very loose stools (tmi)
Parky2170, I gave myself a treat at halfway and again at 20/30!!! First was a bracelet with this on it:
Accept what is, Let go of what was, Have faith in what will be
Mine got reduced twice, then couldn't any more, hence the 'just one more'!! You can do it!!
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