Wobbly

  • 3 replies
  • 117 subscribers
  • 582 views

hiya

odd how things all of a sudden that start of as a thought go from the back of your mind to the front and become all consuming.

I have my diagnosis and my treatment plan now just waiting for my pre op assessment and op date and the type of opp I am  having robotic, or keyhole, 

my wobbly I am my mum sole carer, nobody else to look after her, she is 85, a full time wheelchair user with dementia she is forgetful, and it has effects her emotional and empathy part of her brain the most, she is incontinence both ways a very poor eater. 
she will have to go into rest bite care, I have tried everything to see if I can keep her at home. And get cover for her. she still. loves to read and play on her iPad. 

I am so worried that she will go in and not come out that her condition will deteriorate greatly thinking she has been abandoned. We are 5 yeas in on her journey I sometimes had to fight very hard to keep her as she is now, she is frail and I know that we may only have a few years left before she is lost in her own world.

I am worried she will not be looked after well, I am worried if anything goes wrong with her medically they will not react quickly, I am worried she be put in a dementia wing where she would cope, and  not go into an extra care wing. Why do I worry about all this because my mums brother had all these things happen to him and I was his power of attorney I visited him 3 to 4 times a week, and still could not intervene with his care. he never recovers and got lost very quickly 

I think for me this is the worst part of my illness, It could shorten, my mums time as mum and lead her into being permanently in a home.

I feel I am betraying her I promised I would always look after her. 

I know I have to have tthe operation, recover look after myself, before I can look after anybody else But it weighs very heavily on me 

  • Hi 

    I can understand your concern and noticing changes in my own wee dad at the moment so understand your heart felt pain and concerns over your mum’s care .

    As a previous occupational therapist can I just say it’s not often you encounter such selflessness when facing your own surgery . Your love and care for your mum and her family is very moving . You are one devoted carer .

    I think you need to have a chat not only with the care manager in her case but also the care provider and get the reassurance from them that this is respite and not permanent care . I know you have a previous bad experience that is shaping your thinking and concern but can I reassure you there are many , many cases of respite to facilitate the needs of the primary care that do revert back to home care .

    The other thought that springs to mind . Whilst you can’t account for the hospital stay , once you are mobile you can hopefully visit her before resuming care and get the reassurance she is well cared for . You might also like to ensure the staff set up FaceTime for you both so you can at least maintain contact where possible in hospital. Hearing your voice would still be beneficial for her .

    There are some aspects that are totally out with your control . But there’s are able to at least be lessened with digital input .

    Thinking of you .

    Court 

    Helpline Number 0808 808 0000

  • Hiya Court 

    thank you for your reply, sometimes thinking straight is hard when so worried, I think you have made some great suggestions, definitely be looking into 

    many thanks feeling a bit calmer today 

  • It’s a lot  and you are entitled to a wobble . I does not help when you have experienced situations like your uncles but honestly respite care was something we facilitate a lot and it worked well .

    But also time to look after your own health and needs just for a few weeks .

    Take care ,

    Court 

    Helpline Number 0808 808 0000