Mum diagnosed

Hi 

Just want to welcome you to the forum . 

Mum’s are very special and I understand how you feel . Do you mean they can remove the primary tumour and debulk the liver as well ? 
My mum’s friend actually had a neuroendocrine bowel tumour and spread to her liver . They used a different treatment approach for her cancer due to the cell type but she actually responded very well to it .

My mum was given a difficult diagnosis back in 2009 and it was so hard to hear but slowly she was able to reduce the tumour load and that kept opening up other options and she is still here all these years later .

Chemo allowed her to get to a liver surgeon who was able to remove 73% of her liver .

We are very much here to support you and your mum .

Does she have a date to start treatment,?

Take care ,

Court 

Hi court 

yes the primary can be removed but she has been told that there are four tumours in the liver and she also has carcinoid syndrome and has been extremely ill. We see liver surgeon this week and will know more but they just don’t seem very positive as her pancreas has also shut down so she’s on a tablet to mimic pancreatic enzymes… been so much bad news I feel so down and watching my mum is breaking me 

It is so horrible at the beginning and feels like a series of unfortunate events that just keeps unfolding .

I have had a quick read up on the syndrome you mentioned . They will try their best to stabilise her condition and allow treatments to occur . Have you managed to read up on treatments like radio frequency ablation ?

It is all so raw and frightening. Have you managed to see your own GP to get some help yourself . I did and it was the best thing I did . Despite a very difficult diagnosis some people still mount a response to treatment.

Its slow and they aim to stabilise the disease with continued reevaluations and adjustments .

But you also need to have your needs addressed too . It’s a very frightening time . Our helpline staff 0808 808 0000 would be happy to chat this through with you . They are excellent at this stage where nothing makes sense .

Happy to chat at any time ,

Court 

Hi court I have spoken to doctor as I was trying to keep going but had massive breakdown ….

Yeah I have been reading about different treatments …

we will know more this week when we meet liver surgeon it’s just so hard 

thanks court. For replying it’s nice having someone to talk to 

Any time at all as I know how difficult it is especially when you only have half of the information . The liver surgeons are great and explain everything really well .

It is such a big organ and it regenerates . My mum had 73% removed and it worked very well indeed.

So glad you reached out to your dr . We all need a little help from time to time and it strengthens us .

Once they actually formulate a treatment plan and put dates in place it really helps !

Keep chatting. We are all here for you .

Court 

Thanks court I will keep in touch you have been amazing 

Good luck court and Shadrowb

do hope all goes well . I was diagnosed with ovarian/peritoneal in nov 2019 .I was 3 c . Early January I started having seizures, whole brain radiotherapy was not recommended as the benefits were insufficient to outweigh the risks . I wait to hear from my oncologist in late March . In the meantime my seizures are controlled with epilim and dexamethadrone . Has anybody else had experience of this

Hi 

My friend had a spread to her brain from a lung tumour but they did give her whole brain radiation. 
She did not have seizures though and it did seem to be effective at holding it at bay .

Are the seizures well controlled? If you are at all unsure you can have a second opinion . Did they say why it was if no benefit ?

Maybe slow growing anyway .

You have been through a lot . Hope your holding up ok . Thanks also for your good wishes . Very kind of you ,

Take care ,

Court  

Hi thanks daisygai17 I hope alls ok for you … this journey has been awful it’s all happened so quickly but this forum So far has been amazing for support.