loss of speech with oxaliplatin

I had my fourth iv drip last Friday and during the infusion I had a laryngeal spasm and a bout of nausea.  I have been feeling weak and unwell ever since.  I am due a CT scan but haven't been given a date yet.  Clearly my reaction to the drugs has been cumulative and I just hope I don't have to undergo another 4 cycles.

Good luck everyone and let's all get through this awful experience.

Hi Ducati

Sorry to hear you had to endure that . It really sounds so unpleasant and my mum still talks about it all these years later . Despite knowing it’s a spasm and the airway open it’s still very distressing for people to experience. However the team quickly slowed down my mum’s infusion and added something prior to starting her infusion and it made the world of difference. Her second year of chemo her dose was slightly reduced and it made the whole thing much more bearable .

Hope you get a good chat with your team as they will have ways of assisting if you wish to continue .

Take care ,

Court 

Thank you, Court.

Well Court and everyone, I had my CT scan but it was inconclusive.  I then had an MRI scan and have just had the result.  The cancer has gone and I am signed off.  I have pins and needles in my toes and fingertips and have been told I will have them for the rest of my life -  I can put up with that, and the stoma bag.

My wife and I can now make plans and we have already booked a short break.

I have come through prostate and bowel cancers and I hope you good people will be able to share my successful outcomes.  Who knows what may come along next but stay positive and believe it can be overcome.

Good luck to you all.

Excellent news Ducati you have endured a lot and I wish you every success going forward .

Hope for the future and someone to share it with is priceless .

Enjoy every moment ,

Court 

Thank you, Court, and keep up the good work!

Hello!  

Yes my husband is on CAPOX/XELODA Oxipalatin and Capecitabine so many different definintions of this treatment. He took a throat spasm in cycle 2 and it was just like that too went into a coughing fit and felt he couldn't breathe and felt his throat was closing up. I gave him a drink of lukewarm water though and that settled it. He did tell the specialist about it at his oncology appointment though, but it was just a `one off`.  He had been in bed and takes a small bottle of water to keep by the bedside with him at night and I think he had drunk the water too quickly or something. He too has had more tingling in his fingers and toes with the neuropathy in the cycle (no 3) but they have upped his Oxi dosage because he has been tolerating it well. His Capecitabine tablets have been upped from 4 to 5 twice daily also. His only real side effects I've noticed is that his stoma has been a bit more `active` and he gets a bit more tired than normal but I think these are `run of the mill` side effects of this medicine. 

Vicky.

Wow!! Congratulations!! A relief for you and your family no doubt! You are an inspiration and gives the rest of us either with cancer or supporting someone with cancer (like me) hope. Good Luck to you and your family going forward.

Vicky 

5hat's brilliant news Ducati. So pleased for you. I know I don't know you but can imagine the relief you must feel. I remember my time with all the scans - waiting to be told the results.