New to this site and have no idea what I’m doing

I am new to cancer, have no idea what to expect and have no idea what happens next.

i have a meeting on the 4th of March so hopefully I’ll get to know the next step then.

Me to Jocar, was only diagnosed yesterday 22/2/22 

not sure how this groups work 

Maybe we can learn together.

What a good idea

sorry but im still learning how to use this site. But one we already have in common, we are both struggling to sleep im sure we will once we learn more about our conditions and more importantly come to terms with it. I must confess it’s the middle of the night that’s hard for me, it’s the time when reality hits.

I think you are spot on with the not knowing, I was given a list of things and what was going to happen next MMR scans, Ct scans. I will not even know the grade of my cancer is so no idea of what possible treatments there could be.

I as you said did not sleep well i wake up and so many question and how do I find the answers example about nutrition before treatments and During treatments and these are after just some of my questions because this could be critical to my outcomes.

I am sure like me you have millions of stuff running around your head

Heck! I could have written this, a crumb of comfort it’s not just me with these exact questions. I have googled so much, but have learnt this is maybe not the way to go but to wait for the experts to advise.

Hi  and Pippa and a warm welcome to the board to you both. Nobody wants to find themselves here but it’s a great place for support and especially if you’re going through it at the same time as somebody else. 
I shall give you my usual advice which is to stay away from google - it is out of date and downright scary in places - you can ask anything you like on here - there is nothing too daft or embarrassing!

The next couple of weeks will be a flurry of tests and scans and, once the experts have all the information back, then they will meet and decide on a treatment plan for you - things will honestly feel a bit better then. They may be able to give you a rough idea of your staging at this point but the official staging comes from the path lab after the tumour has been removed.

Ive attached a link to a booklet that I was given at my first meeting which may give you a heads up and if you click on people’s names then their profile page may show their journey so far. Bowel cancer is notoriously slow growing but very treatable and I’ve just celebrated my 5 years clear as have the 2 ladies that I went through my treatment with

https://bowelcancerorguk.s3.amazonaws.com/Publications/YourPathway_BowelCancerUK.pdf

Ive attached a copy of a healthy eating booklet too. You may not feel like doing much at the minute but try and get out for a short walk every day - the next few months will be tough but the fitter you are the better.

Please carry on posting and ask if there’s anything you’re particularly worried about and we’ll be happy to help support you both through this

Take care

Karen x

Welcome  and Pippa you are both doing great with the site and offering each other support .

Hopefully we can support you as you work through the next few weeks as your teams gather information.

Most people here fully understand what you are both going through and will guide you .

Take care ,

Court 

Thank you that was very helpful I am starting from day 1 very scary my head is just full of questions so much more positive news my was picked up on routine screening so I am hoping that is a good thing fingers crossed