Colon Cancer

FormerMember
FormerMember
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Hello there, I was really hoping Id never have to use this site again but here I am. In 2016 I was diagnosed with stage 4 cancer. I fought against all the odds and finally beat it. It took sepsis, an illiostomy bag, hystorectomy and 20 rounds of chemo but never the less I did it. This September I will be 4 years in remission. I had my 6 monthly scan two weeks ago and they found what they can only describe to me as a 5cm thickening of the bowel wall. The oncologist has told me that it could be anything. Infections, pollips ect..... I now have an emergency colonoscopy booked for this week. Im trying to stay positive but given whats already happened im not holding  out much hope. Has anyone else on this site been in a similar situation. I need a chat.  Many thanks

  • Hi @badger1. It’s hard not to fear the worst isn’t it and unfortunately only the colonoscopy will confirm what the issue is. I’m sorry that I’ve not been in a similar situation but maybe you could give the nurses on here a ring? They’re available 7 days a week from 8-8 on 0808 808 00 00

    Really hope it’s nothing untoward - please let us know?

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to Kareno62

    7 days a week  is not good enough when I come home from work and the chat lines are closed 

  • Hi . Is there anything that we can help you with on here if the helpline times aren’t working for you?

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to Kareno62

    Hi Karen, Thankyou so much for replying. Im not sure the helpline can tell me anything the oncologist hasnt already. I think in my head I already know whats coming but I cant talk to anyone until I know the results. I just have to keep quiet which is a nightmare. Cancer really is a very lonely disease.

  • FormerMember
    FormerMember in reply to FormerMember
    1. Oh you can talk to us…. so so tough and I’m sorry to hear the latest.  The nurses also may be able to support you mentally even though you don’t have any more information.  One time my husband was entirely panicked about preliminary results and waiting for clearer tests - he did call the Macmillan nurses and they did help - they talked through everything it could be and what might happen next and it really helped calm him. Do try to stay positive until you find out what’s going on for sure…. so often on this journey my husband and I expected something but the doctor told us something else.  It’s the waiting that’s hard.  Over Christmas I watched “Breaking Bad” and at one point the main character gets a peak at his scans and sees a mass on his lung.  He is sure what it is and expects to get a terminal diagnosis … but the next week he meets with the oncologist who gives him the results… he’s cancer free and the mass on the xray is pneumonia.  (Or something like that.). Anyway I now try to wait patiently for the doctors to tell us what is going on.  So sorry though- it’s what we all dread - years of remission and then that scan that doesn’t look quite right.  If it’s any help, I recently had a “thickening” and of course all I read and heard was the c word.  But after biopsies they are none the wiser - could be infection, etc but definitely not cancer.  I don’t know if anything in those ramblings is helpful… if not just ignore me but know we’re all thinking of you and rooting for you.
  • FormerMember
    FormerMember in reply to Kareno62

    Hi Karen

    Thank you for responding . My sister came home from the hospital did not tell our family about her cancer until yesterday although I suspected it . she has now been told the cancer has metabolized  I am not even sure what this means in time she has . she does not really talk so frustrating!!!!!!!!!!

  • Hi  and I’m sorry to hear about your sister. Hopefully when the initial shock has died down then she may feel able to open up to you? The most common mets for bowel cancer are to the liver and lungs and both are treatable. If she won’t talk to you then you could maybe send her a little ‘thinking of you’ card saying that you want to help and support her and that you’re here when she feels ready to talk? 

    Please feel free to keep posting on here - we’re here for everyone not just those with the cancer. 
    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to FormerMember

    Hi Juppy

    Thankyou so much for your reply. Im trying to stay positive but given my history I think I know whats coming. I havent told my children yet because there just rebuilding there lives and getting back on track from the last time I had cancer. How am I going to tell them there going to have to do it all over again. There only young and still so fragile from the last time. I think im just going to have to stop second guessing everything and just wait to see what the colonoscopy shows. Im wondering, if its a tumour, will they be able to tell me there and then ?? Anyway, tomorrows the big day so im off to take some laxatives and make friends with my toilet. I'll make sure to let you all know the results. Good or bad.

  • Hello badger01,

    I’m so sorry to hear you are in such turmoil at the moment. I’m thinking of you and hope you get some good news soon. Waiting for information/results is such a lonely place.

    Best wishes,
    Net x

  • FormerMember
    FormerMember in reply to FormerMember

    All best wishes for today and let us know how it goes.  We’re rooting for you!