I have been scared to even think about this. I have been told that after surgery and liver ablation I am again cancer free. I’m on chemo therapy. I was told I was complex, but also on a letter it said having chemo with the hope not to relapse back into cancer. So even if told complex can you stay cancer free? The surgeon said he got all cancer out , no cancer found in the margins.this has been whirling around in my head. One even mentioned treating has chronic and keep close eye on me. Should I just wait and see after chemo or speak to the oncologist when they phone me before next treatment. It has been on my mind. Even my doctor colas£ all the paper work and said I was cancer free and the chemo was ajavant to mop up any stray cells . Anyone help?
Hi Nelly1955
I think my mum would certainly have been classed as an advanced cancer 1 primary , over 10 liver mets snd 1 lung met and went onto be cured . So as long as they have been able to eliminate with treatment the disease then a person can go onto surveillance scans. They class that as NED ( no evidence of Disease). Or no signs of metastatic spread .
The chemotherapy post surgery is to try and eliminate microdisease .
You ask your oncologist anything you feel necessary or troubling . Better to be reassured than let it swirl round .
Take care ,
Court
Helpline Number 0808 808 0000
Thank you Court, I’ve been pushing it to the back of my mind ,but it keeps resurvicing. They said I had spots on my liver but when I next asked about them they said they were nothing. I feel sometimes I hang on to negative because I afraid to hope. I think it s feeling unwell on chemo. Sorry I might have reposted because I didn’t think it came up. Thank you once again Court always appreciate replies xx
Well I certainly would hope they would not class cancer spots as “nothing “ !!
You have had so many knocks in quick succession I think it’s only reasonable for you to be feeling it but just look how far you have come and the amount you have already endured . That’s more than most have to do in a lifetime .
You are hard on yourself . I think you have endured very well indeed .
Hope you are getting some nice plans ready for when you finish chemo .
Court
Helpline Number 0808 808 0000
Hi Court, when my letter came in in January it also said extramural perineural invasion and intramural venous invasion identified margins free of tumour. RO resection. Although further tissue being examined for more lymph nodes and a supplementary report will follow. When I spoke to the oncologist last Wednesday she just said cancer free. I just kept hanging on to cancer free, having a bad day today so just felt I had to address it. The letter he sent after, and Sod’s law can’t find it was to say about the ajavant chemo in the hope I don’t relapse back into cancer. When he was talking about spots on my liver I think he was going over the ablation of where there was 1 liver met that was ablated last April. Clear scans for that but the small area of concern which had already been diagnosed has cancer reacurrance, of which the surgeon told me it had regrown because there must be cells left from previous treatment and regrown. Thank you for all your replies. Yes I do keep of thinking what to do when this treatment over, but having one of those dark days, after all the side effects of the treatment, I haven’t had a throat spasm today, but my face keep going into spasms and my hands are not so bad, it is only when I touch something cold, yesterday it was anything. Sorry for the long post. Xx
If your oncologist said cancer free then you definitely are .
Often after treatment on the liver either through surgery or radio frequency ablation I think there needs time to get good images after these procedures . The liver is healing or regenerating and to be fair to the radiologist I think they just need time to make sure . My mum’s would have a reference to these areas at the beginning .
Glad you are able to come here and share on your bad days . It reduces the isolation and sometimes actually clears thought processes .
Hope you have a good night .
Court
Helpline Number 0808 808 0000
Thank you Court, I just over think things, not being able to go out and feeling so crappy just gives me the headspace to do this. I really do appreciate your replies. I have a call from the psychologist tomorrow. It is definitely a roller coaster, thank you once again. Xx
Thank you for your reply like I say I always appreciate them. I feel like I had so many things said, that are a bit conflicting. My surgeon when he phoned said put this behind you. The oncologist said complex,. I love your illustrations, they are beautiful. Thank you. Hugs back o you xx
Hi Nelly
i can fully understand your concerns. There’s so many words thrown around at the meetings we have…….. and words stick.
I feel quite positive about your consultants feed back. He got it all out! He was there and knows.
Mine has said exactly the same He told me that he got it all out and he felt it with his hand. He then smiled.
Try and think of those words
Sending you a hug
Ann
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