Cancer progression while on immunotherapy

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Hi as anyone experienced cancer progression whilst on immunotherapy? My husband is having he's Ct scan on 15th Feb he's 1st scan showed he was stable with some shrinkage in one affected lymph node this was back in November but for the past few weeks he has been having some pain/discomfort around where he's primary tumor was removed and is having some constipation and he's bowels are making funny sounds like they did when he was 1st diagnosed. The oncologist said that because he's 1st scan while on immunotherapy was stable he would expect this scan coming up to be stable too but my husband had a good response 1st scan but my husband is convinced treatment has stopped working because of the symptoms he is having I am just wondering if anyone has had progression whilst on nivolumab immunotherapy? I have read so many promising stories but never come across a negative one about immunotherapy and I am getting my hopes up that this treatment will be some kind of miracle cure for him but my husband thinks I need to stop having so much hope as if it isn't working I should be prepared... sorry for rambling on and if it doesn't make sense.

court over 3 years ago

Hi ,

My mum actually had a lot of bowel pain during her chemotherapy but it was actually just her colon getting a bit sensitive with treatment . I can understand where your husband is coming from and it’s only natural to protect yourself particularly given what he has endured .
However it could also be side effects of treatment .

Still holding out for more good news for him .

Court

Helpline Number 0808 808 0000

Moi2 over 3 years ago in reply to court

H iHayleyc89, I'm on same treatment as your husband, and yes constipation is one of my side effects, ask his nurse what is best laxative for him to try. I also have wind rumbling around especially if I have raw vegetables or some cooked vegetables. I hope his scan is good . I'm 20th round on Monday. Take care xx

Hayleyc89 over 3 years ago in reply to court

court I'm trying to remain positive and personally I believe it is the side effects of treatment my anxiety is always heightened when a scan is coming up. Hope you are well. X

Hayleyc89 over 3 years ago in reply to Moi2

Thank you Moi2 I hope you are well. My anxiety is through the roof right now with the scan coming up every little niggle worries me. Do you suffer with fatigue? My husband does he gets breathless very easy too even just walking upstairs tires him out I want to speak to the team about the symptoms he is having but he doesn't want me to he thinks I'm just fussing over nothing but I am a worrier I can't help it. I hope you are well xx

Moi2 over 3 years ago in reply to Hayleyc89

Hi Haleyc89, after my treatment for a day or so I do have a little fatigue. I do get a little breathless on anything steep, have started yo on the stairs. I alway have issues with my chest in the winter . Do speak to your team about his issues, they always ask about these things after his blood results before, treatments done, I call it my 20 questions. It's a worrying time waiting for scans and esults. Mines on 10th. Take care of yourself as well. Good luck with the scan x