Sorry for my late message

FormerMember
FormerMember
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As many of you might know from my previous posts, I haven’t posted for a while.

my brothers fight with this evil disease is very much over. My brother 2 weeks ago after many hospital stays due to ascities, had a procedure to have a permanent drain.

4 days ago due to my brother not able to keep medication down and he had a syringe driver in his groin for Macmillan nurses to go in every day to administer his medication.

My brother can’t read any text messages people send him. So  Myself and my son sent him voice notes.

We have such a family unit, even when I’m writing this I’m smiling about the mischievous things he got me into.

He doesn’t want any of us to see him right now. It’s very painfully, but we have to respect his wishes.

if anyone can give me any advice I would appreciate it 

  • So sorry for you all. Just look after yourself, and know that you are helping your brother by respecting his wishes. Yes its very tough. Sending you a very big ((hug)).

    Hope a Charlie Mackesy might help.

  • Hi . I’m so sorry to read the update on your brother. You are an amazing sister and as you say, as difficult as it is, you are respecting his wishes. I’m sure he’d enjoy being reminded of someone of your happy memories and it would put a smile on both your faces.

    Sending you a big virtual hug

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Oh  when I read your post I just think your lovely brother has remained selfless wanting to spar you the memory of seeing him ill . I just think of him running that marathon when he was so ill.  I have said it before and I think it’s worth saying it again the humanity I find on this forum humbles me greatly. Here are the giants of character found !

    I honestly don’t have the right answers but I think your idea of speaking your message is great and I am Sure making video messages would be most comforting .

    All I know in times of trouble family hold each other up !

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • I'm so sorry to read your post. I know it must be incredibly painful to not be able to see him. Respecting his wishes honours the man that he is and shows your love for him. He has been strong and determined. You've been a great sister to your lovely brother and I'm sure that your voice messages are a great comfort to him. 

    Cheryl x

  • So sorry to hear about your brother, thinking of you both and although respecting his choice not to see you must be awful, I would do the same for my brother. I hope that he has good management of his symptoms, and that he is as comfortable as he can be.

    Take care

  • FormerMember
    FormerMember

    Hi thank you all for your messages.

    My brother daily is going to a specialised cancer day unit each day to help his pain. 

    As much as how painful it is not being able to see him, we have to respect that. He is trying to protect us which when all we want is to be with him. 

    We all as a family will be with him. Does this sound really a strange thing to say I’m at peace now with this. I have to. I don’t want him to be in pain and to constantly go through this. 

    As hard as it is I can’t be selfish. 

  • No , it sounds as though you have wrestled long and hard with the painful situation you found yourself and your family in and how come to a point of acceptance and peace .

    I hope he continues to be surrounded by love and pain free .

    Peace be his journey .

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember

    To give you all an update. Yesterday my family were told my brother has less than 48 hours to live. We live in Surrey and he lives in derby. 
    He is in a specialist Macmillan ward in derby. The aim is for him to go home tomorrow as that is his last wish. 
    I saw him earlier, it’s time for him now. My family are staying in a hotel across the road from the hospital.

    I had some time with him alone.  we held hands and we both cried. He said sorry for not being able to fight anymore. 

    he has been my best friend! We made a joke about the mischief we got into to. 

    He is such a hero and my parents I honestly don’t know how they are coping. 

    We are just hoping he can get home. He was shocked when they said it’s less than 2 days- he thought he had months. They have told us that if his liver functions drop anymore he won’t make it through the night.

    As children my dad was a minster of a church- non of my siblings kept going to church when we were teenagers. 

    I don’t know what anyone’s beliefs are But I honestly pray he is at peace, he will be pain free and go to a better place!

    I said to my brother earlier. It’s not going to be a goodbye it never will. 

  • , sending you all peace and love, will be thinking of you. ((Hugs))

  • Oh . My heart goes out to you and I hope you are able to bring him hone to pass peacefully surrounded by all your love x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm