Low rectal cancer treatment went wrong - anyone been in a similar position to me?

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Colorectal tumour diagnosed April 2018.

Prostate cancer September 2019: an incidental prostatic adenocarcinoma found during partial excision of the prostate.

Having been through chemo radiotherapy, Papillon and finally surgery to remove the tumour I had to return to theatre with sepsis and ended up with a "temporary" colostomy.

I have been waiting for two years years to have the stoma removed and this has been delayed a number of times due to covid etc.

Until now the hospital have appreciated my frustration and kept me on the waiting list for surgery but on my last visit the mood seems to have changed and I was strongly advised not to go ahead.  The risks are:

1. Injury to bladder, prostate and ureters.

2. Poor evactuatory function including a high chance of faecal incontinence postoperatively (I have an anus but no rectum apparently).

3. The need for a temporary ileostomy with a second operation for reversal.

It all sound horrible - but why the sudden change  in mood from the doctors?  I'm wondering whether it has anything to do with the enormous pressure hospital Trusts are under to reduce their waiting list backlogs due to covid.

Has anyone here had continuity restored after a similar set of procedures to me and if so how are you getting on?

I'd like to hear your experiences so any comments welcome.

  • Hi 

    I can’t help but wondered about a second opinion from another surgeon just to hear how they would proceed .

    We found that very effective but would also answer the question you have regarding it being a convenient solution to the NHS . Certainly would go out with your health authority to get that part answered in your mind as it’s important to know the answer to that .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • My first operation to remove the lower colon cancer (December 2020) seemed to go OK. I woke up feeling fine and relieved not to have a stoma bag as they'd warned I might need, but four days later test results showed that things were going wrong (I still felt fine) but scans an X Rays said I needed urgent re-treatment. This time I woke up with the stoma added after all.  It took eight weeks after a long period of Exorcist quality projectile vomiting for me to be released back into the wild. 

  • Thanks court. I think I've run out of second opinions and I'm probably in the most capable hands now.  I guess I'm curious to know whether anyone on this site is managing well with no rectum and no stoma because in stark terms the choice seems to be between having a permanent stoma or having potential life long faecal incontinence (with damage to my bladder thrown in for good measure)..  

  • Sorry to hear that Forester42.  Hope you're adapting well to life back in the wild.