I’m not sure how I feel after my meeting today. Thank God my daughter came with me and took notes. My daughter told me off and said I just hear the negative. So he went through what had happened so far, told me I wasn’t a text book case and I was complex. I think I might of cut off at that point. He thought I would be on chemo for six months and he checked with his boss who said three months. I have the options of two different ways, infusions for 6 cycles or tablets and 1 infusion for 4 cycles. They give me info on both. I left it with my daughter, she will read over it, then we will go through it together. I am going back in on the 5th of Jan to let them know and my follow up with surgeon is 6 th Jan. I thought that was on the 20th Jan but glad it is nearer. I asked him what I was and he said cancer free, but I just got an uneasy feeling. He said do you want all the information. I felt apprehensive, but my daughter said all the information.. I think I’m still feeling fatigued after the operation . The questions that I ask I know there is no answer, like will I survive. I just think when I visit the hospital I fall to pieces.was he trying to say it will come back? Again told the chemo is to help get rid of what can’t be seen, micro spots. They said they think I respond well to treatment. If I have infusions alone I have to have a port or pic line fitted. Sorry if not making sense really tired. Nelly 55
Oh Nelly I really empathize with you . Struggling with anxiety like I know you do you ( like me ) always hook onto the negatives and wash over the positives . The great news is your cancer free . Chemo is just a reassurance . I had 3 months after my resection , which was 4 infusions followed by 2 weeks of tablets after each one . If your like me I’ve always got that worry that it might come back but I hope that slowly disappears with time . Your daughter sounds amazing . If you still have questions maybe she could give them a ring and ask for reassurance about things . I didn’t have a pic line fitted but if I had to go through it again I would have one as my arm got quite sore. I really hope I’ve helped a bit . Sending loads of love , Nelly B XX
Hi Nelly, thank you for replying. They will only put in a pic or port if I have the two infusions. I wish I didn’t have a choice and they just told me what to do. You have helped, thank you..I had to ask him what I was. My last scans came back clear apart from the bit on my colon.I asked about scans because I was getting them every 3 months, my nurse said they will scan me whist on chemo, is that what they did with you? Has your anxiety calmed down ? Sorry to many questions. Sending loads of love back to you xx
Ask away . Because a lymph node was effected I had the chemo . I felt quite poorly with it which sent my anxiety through the roof . I was on antidepressants which hadn’t really kicked in properly so added to it all . I just felt I was completely loosing control . The lovely colorectal nurse put me in touch with the cancer psychologist but because I felt so poorly I didn’t speak to her until after my treatment. I didn’t have any check ups or scans until 8 months after chemo which really freaked me out because all sorts was going through my head . I had about 6 sessions with psychologist which did help . It’s now been almost a year since treatment has finished and all is clear . Unfortunately my anxiety got worse for a while . It was a bit like post traumatic stress disorder. But now I’m very slowly getting better . I still get panic attacks but they are getting less and I’m feeling stronger . If I had to go through it all again knowing what I know now I think I would of coped better . I think anxiety made me feel worse . I really wish I could take anxiety away from you I really do , it’s horrible when your head takes over . Sending a gentle hug XX
Hi Nelly I did reply to you but it doesn’t seem to have come up. Thank you I really appreciate your replies, I know the chemo will start sometime in January, I have to go in for another appointment on the 5 th so I should know then. So glad you are a year clear. It must have been hard for you to wait 8 months for a scan. I’m just two months past and need another one. Wish we could have one by the door and get scanned everyday t o put our mind at rest. Sending you big hugs and thank you once again for your help. Nelly 55 xx
Thank you L16, I wish they hadn’t given me a choice. I did put it back to them and said I wanted to leave it in their hands as I know nothing about chemo except for the tablets I had last year. But they gave me the information anyway. I send all the best wishes as you go through the chemo. Do you know when you start? My op was on the 19/11.thank you I would be glad if you kept me posted xx
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