Hi, I am new to the group. My husband has bowel cancer. He had an ileostomy a few weeks ago and started chemo today. His bag started to leak. When he took it off to change, diarrhoea was shooting everywhere. We were told diarrhoea was one of the possible side effects, but we weren't told it would shoot out everywhere like a water pistol. Just wondering if others have had similar experiences please, and any tips for containing it whilst trying to clean up before putting a new bag on. Hopefully we can contact the stoma nurse for advice tomorrow too.
Hi FoggyDay,
Sorry to hear of your husband's problems. I had an ileostomy for a year and CAPOX chemo for three months while I had it and, although I might have had the occasional runny output I never had anything like you are describing. In the long term he will probably be able to control it with loperamide taken half an hour before eating. For the moment if you have any loperamide (immodium) I suggest taking two now.
As far as trying to clean the area while it is still pouring out I can only suggest wrapping something around it to divert the output while you clean the area and then whack a bog on quickly. If the loperamide works he can change it again when it settles down.
Don't forget that if he is losing that much fluid he needs to rehydrate.
Sorry I cant be of more help
John
Hi, thank you for taking the time to respond. He took two loperomide straight away, so just hoping it helps. Hopefully if the bag doesn't leak tonight, the stoma nurse will give us a suggestion as to what to wrap round it whilst cleaning up. I'm thinking maybe an aerosol top? He's drinking plenty, so hopefully is hydrated, but thanks for the reminder.
Hi FoggyDay
Thanks Court
I didn’t have chemo but I’ve had diarrhoea. It can be tricky to manage especially when you’re coming to grips with sorting it out with normal output.
The Stoma nurses are great they will make sure you’ve got the right bags and give you extra stickers, some rings to apply around the stoma which will help stop the output making the skin sore. They’re amazing. Convex bags are potentially a good choice allowing a little extra fire power.
Prepare some strips of kitchen roll, make into circles that fit loosely around the stoma not touching it. Then you can clean skin around dry it perfectly. Apply pouch to dry skin with the extra stickers.
I found that the nurses were so supportive and once you’ve got the right equipment it’ll help.
Sleeping was better pumped up with pillows on my back.
i hope this helps.
Others here have much more experience with coping with chemo.
Ann
Hi FoggyDay At first you need to get everything within easy reach and in order of work.I had a towel unit with everything on this .Even my black bags inside a bag .My husband use to sit on a wee seat and pass the things to me .Every time I saw in Home Bargains I got packs of diarrhoea (own make) 59p that's what the chemist would give you .also melt in the mouth instant
Get him to eat some Jelly babies and Marshmallow are good to thick it up. Remember that his Stoma has no nerves in it so no pain when cleaning it up. As Artsie said the area round has to be DRY and a close fit round the Stoma.
Hopefully you will have a phone number for your husband s Stoma nurse phone them for help Mine said it's like riding a bike easy when you know how. Thinking of you both and let us know how things get on..
Alaine
Hi.I had capox and luckily didnt have as bad a time with diarrea but I was given lopermide just in case so that may be the way to go.
When changing my bag I always do it over the bathroom sink.so he could line the sink with kitchen roll or dry wipes before removing his bag,thus catching any extra which could then be gathered up and put in the disposal bag.might be worth an experiment
All the best
Kath
The only thing I can add to this is for him to take the Loperamide so that the output thickens, 2 in the morning then another 1 4 hours later and continue til output is thicker. Then try to change the bag before eating. You will always get some coming out, you just have to be ready with wipes or tissues. If you’ve not long eaten it’s really hard to keep up with the output! The marshmallows and jelly babies after a meal are a help though and extra calories
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