I had a high anterior resection to remove a 12cm tumour 2 weeks ago everything went well they removed everything they could see and sent off biopsies. Got my results today on my. Birthday of course that the cancer was found in a couple of lymph nodes and the margin wasn't clear where they removed it so I will need to have chemo. They are leaving me to heal for another 2 weeks then I'm seeing an oncologist and I'm so scared. I don't know how to feel I can't cry I just feel panic. My poor kids I feel so bad for them I hate having to put them through all of this. I have been told it will be 6 months of chemo. I keep trying to stay positive and look to the future and everytime I hope I get kicked in the teeth. I just feel. Gutted for my family and my kids. I just keep thinking I'm going to die! My whole World is coming crashing down around me and I can't do a dam thing to stop it. Some advice on what's going to happen when I see the oncologist in 2 weeks would be nice as I have no idea what's going to happen. X
Hi
What a rotten way to spend your birthday for sure . I am so sorry you have had to go through that .
Most people don’t get to see how effective chemotherapy can be . It can be very powerful indeed and knocked a substantial spread off the scan for my mum . Lots of people have lymph node involvement and I will link in Kareno62 to share her experiences. Certainly it would be beneficial to ask your oncologist about options on managing the margins . What’s the best way forward ? Others have certainly had good results using chemo in similar circumstances. My own mum did not get a clear margin on one of her liver resections . It was upsetting at the time but rectified at a later date after chemo .
Fear is a horrible thing . The oncologist explained the benefits of additional chemotherapy for my mum and she had a further surgical procedure.
My mum has seen off over ten liver mets and a lung met and still here twelve years later . They have robust scanning programs and go in quickly where possible . A complete lifeline to her . But you are only human and totally understandable that you are fearful just now . Hopefully after a good talk with your consultant you will feel more supported in this .
Next year a much better birthday is in order for you .
Take care ,
Court
Helpline Number 0808 808 0000
Hi . I’m sorry you’re struggling at the minute but please remember that you’re still recovering from a major op which can mess with you emotionally as well as physically. It’s quite common to have chemo after the operation and it’s worth it to give yourself the best chance of totally beating the cancer,
The oncologist will discuss what type of chemo you’ll be having and how often. Yes chemo can have a lot of side effects but you’ll be closely monitored by the chemo nurses and there are lots of different pills and potions to combat any that you have. Chemo affects everyone differently so it’s hard to predict how you’ll feel during it - I was lucky and continued to work part-time in an office throughout mine - others have struggled with fatigue and found an afternoon nap helped.
Write down any concerns or questions that you have and remember that this is for 6 months then you’re done.
Please let us know how you get on?
Take care
Karen x
Thank you for your reply. I will definitely be asking alot of questions but I have new worries as of today after my appointment my wound is not healing and I need to now have a vac dressing to close a hole in my incision which isn't a quick fix can I still start chemo with an open wound? X
Hi . I don’t know - you could give the nurses on here a ring on the number that Court gave you above? They usually like to start chemo within 8-10 weeks of your op so you’ve got some time to play with and hopefully the wound will have started to heal by the time of your appointment x
Hi Natalie, I totally understand everything you've just said. My surgery was in August and I'm currently on capox chemotherapy. Your emotions will be all over the place, mine still are. Some days I'm really positive and others, I convince myself I'm not going to be there for my kids. Try to concentrate on getting strong again after your surgery. It takes time, but you will get there. Once you meet your oncologist and they explain what's going to happen, hopefully you'll feel more at ease. The oncology nurses are fab and any issues you have will be dealt with. Try to focus on the positives, your tumor is out as are the lymph nodes. The chemo is just to catch any other little bits that may or may not be there.
Feel free to message me if you need to chat.
Try to enjoy the rest of your day.
Happy Birthday.
Michelle xxx
Hi, , I doubt if chemo will start with healing still to do, as healing is high cell growth which is what chemo targets. I might be wrong that's just what I think! I also had long weekly chemo, for 30 weeks (which was done over 34 weeks) just 5FU , which was doable, but got tougher as the weeks went by as it is cumulative.
Take care, happy to answer anything if I can help.
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