Hi my husbands had 6 rounds of nivolumab immunotherapy and he is really tired all the time like a simple 10 minute walk to our children's school absolutely wipes him out to the point he has to take a nap when we get home he is sleeping a lot lately and having a lot of bloating too I'm really worried but he won't get checked out he says there's no point wasting the hospitals time when he has recently had a ct scan and we are waiting for the results and he gets he's bloods done fortnightly so he thinks that if anything is wrong it will be picked up on the scan or bloods. Such a worrying time and the anxiety of waiting for scan results is a whole new level!
https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/nivolumab
Hi Hayleyc89
I have linked in a leaflet on side effects that I am sure you will have seen before but if you scroll down to the “fatigue” section it does suggest it could be something to do with hormones being affected and needs intervention.
I know he does not like to be a burden but it might be something they can help him with and need to know about .
They may even be able to give him his results . You never know .
This is so tough on you to . You have both gone through a lot .
Take care ,
Court
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