Feeling really despondent today, thought things were getting back on an even keel with my brother after several bumps in the road with infection, bowel obstruction and various other little hiccups. He has gone for his chemo today only to discover that his flaming portacath has migrated and is no longer in the blood vessel. He couldn’t have his chemo, spent the whole day trying to get it sorted but it needs to be removed. Couldn’t do it today while he was at the hospital, he has to have it done tomorrow under local anaesthesia. He has also had to travel 6 miles to another site to get a bloody covid test, I think this is ridiculous and to say I’m not happy is an understatement. What a carry on when people aren’t well. The radiologist who inserted the portacath says he has not seen this complication in the hundreds he has inserted. My god is there anything else that will go wrong? I’m so upset about it all and he is so fed up with yet another problem. I am afraid I wasn’t the nicest to the oncology nurse on the phone today but I was not getting any answers to my perfectly reasonable questions. I think I’m going to talk to him about having his treatment elsewhere, where there is medical cover. The oncology unit he is at now is a nurse led service, which I have no issues with but last week when he presented for his treatment with symptoms of an ear infection, there was no one there to examine him, he had to try and get an elusive appointment with a gp to diagnose this. Today it has taken hours to get answers while the nurses e mail people and wait for replies. I feel very guilty saying this as they are very pushed and trying their best but my main concern is getting the right treatment for him. Sorry for the rant and thanks for listening you amazing bunch.
