Hi all, hope youve had a managble weekend, just letting you know i start my 1st treatment cycle tomorrow, been told il be there 4 to 5 hours ,so thats my morning planned, been told other ppl be there also, so at least i can chat to others hopefully, and as we are all in for treatment ,im hoping to find out how to manage whats in store, as other people will have been having treatment before me,also to get some tips, and make new friends along the way ,my treatment plan is, 1 week off ,1 week on, and i will be coming home with an attatched bottle? ,as thats thats something new i have to learn how to manage, my medication will be ,Cetuximab (Erbitux ,(R in a circle above it ?, and Irinotecan with 5FU and folinic acid, may i ask if anyone here has had the same medication, think thats it for now, Have a good afternoon everyone, Hugs to all x
Hi , I hope your first treatment goes well, the first one is daunting but once you've got one under your belt and know what to expect it's so much easier. They will take very good care of you, I had a specialist nurse who saw to all the newbies and spent lots of time going through everything and you can ask any questions. I had a similar combination, they will provide you with a small bum bag type thing to pop the pump in, I had a district nurse come to my home after 48 hours to disconnect. I got dry skin from the cetuximab, they will give you cream which should help and I also took antibiotics everyday. You will come home with a bag of meds, my nurse wrote on the boxes what they were all for which was helpful until I used to it all.
You will also be given a 24 hour helpline, so there is always someone to contact if need to. I had a call before each chemo to see how I was so make a note of any side effects as they can adjust your meds accordingly.
Let us know how you get on, you've got this!
Best wishes, Michelle. Xx
Hi Michelle Ty for answering, i know we get some good advice from you lovely people, and that puts us at ease, i hope you are doing well if you are still having treatment, but i got a call this morning ,to say my app was cancelled ,due to me not having a certain type of blood test , so looks like start date put on hold until next week, Take care xx
Oh no that's a pain , just when you got yourself all psyched up for it. Ah well, you can enjoy another week off and I'm sure they will get you in as soon as they can.xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007