Hi All, i am new here!
I am looking for some guidance / reassurance / information - i don't know really.
Back in March my partner was diagnosed with Bowel Cancer, within 6 weeks he was in for his op, tumour removed and healing well. He was put on a course of chemo (oxiplatin) as 6/15 lymph nodes taken were cancerous.
During chemo and blood tests his tumour marker within liver went up to 8, then 15 then back to 9. At this point he was asked for an urgent CT and MRI.
CT scan finally done, it has shown circa 30 lesions in his liver, a couple in lungs and abdomen too.
We are horrified he wasn't called for a CT scan sooner - that's a separate issue.
But basically they have told him they can't cure this, operate on this or provide any other treatment but chemo to manage it....
Hes 37, we are set to get married next August after the best 5 years together and I feel like my world is falling apart. My 10 year old daughter doesn't know about the latest diagnosis, she adores him and i can't bring myself to have this conversation with her at all.
Has anyone been/ or in a similar situation. Is a second opinion worth pursuing?
Are there any other treatments we should look into, if we have to pay to go private, we will.
Thank you all in advance!
Hi my husband was diagnosed at 37 too he had neoadjuvent chemo then surgery and 19 nodes removed 1 had cancer in so he went on to have mop up chemo 3 cycles in he's cancer has returned and spread to he's para aortic lymph nodes so he is now palliative but on nivolumab immunotherapy to prolong things. Xx
Hi me and my husband have 5 children and I have told them about their dad's diagnosis it is the hardest thing I have ever done but I had great support from macmillain, our local hospice and my husband CNS I also bought a couple of books that were recommended for children who have a sick parent or family member one book is called badgers parting gift and another is flamingo dreams I use these as stories and then give the children chance to ask questions etc. I really feel for you it has hit my children hard they are 13, 10, 8, 6 and 3. I felt I couldn't hide the diagnosis as life completely changed for us my husband used to work full time and now he's in bed a lot and he had a picc line and nurses coming to the house so I just found it easier to be open with the kids about things as they had a lot of questions xx
Hi mojo46
Oh I am sorry to hear that it's a bit disappointing to think you have gotten rid of it for it to bounce back again but somewhere else !
When was you first diagnosed ? Sorry you may have already said so on here but don't think I have seen it
Take care
Jimbobs
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