Forgive me if I’ve posted this already . Try to navigate myself around this forum . Not great on computers .
Just wanted to thank you all for your kind messages yesterday,after my diagnosis if bowel and liver cancer
today I’m home . And I’m struggling to know what to do with myself .
I have to have scans and a colonoscopy in the next two weeks ,before I see the specialist
I find myself staring int space thinking the absolute worse. Making up scenarios in my head as the drs tell me there’s nothing they can do . Can’t stop thinking about family ,friends , and tv personalities who have just passed away with cancer
it’s all so negative . I feel if I don’t get myself out of this it will do me more damage .
I do have support around me , and my gp has given me some antidepressants to help me . He’s been very supportive
I seem to be my own worse enemy. It’s almost like I’m scared to be positive.
Hi
I think after the shock you have had this is perfectly normal but you will gain a little strength when you have more details !
Unless you have other health issues by far the majority of people do get treatment that pass through here ! I think we all worried either patient /relative that nothing can be done but oncology is very good at stabilising people for treatment !
Many people find the emotional aspects of a diagnosis harder to get a handle on to begin with and with good reason ! Other people are not your reality. I hope you can hear that , only your own response to treatment dictates your treatment. But in the early days of a diagnosis people report cancer jumping out of adverts , story lines on tv etc !
Please don’t be hard on yourself as it takes time and care to start facing this situation you find yourself in . People bounce from optimistic to devastating and overwhelming emotions very quickly ! It’s very early days and they frequently come by here and chat this through with others who understand and gently remind them that bowel cancer has many treatment options and this is only the start of treatment and hopefully you will mount a good response.
Do you know the size of the liver tumours ?
So please do remind yourself often that you have treatment options and you will get some clarity and structure really soon and the plan will give you a lot of help !
take care ,
Court
Helpline Number 0808 808 0000
Hi Darcyolly
Sorry to.hear that you are going through a rough time at the moment coming to terms with what happens next.
I have been in the same situation really to be honest and I have had bowel cancer for 5yrs but gone to stage 4 it's not curable but it is manageable
So there is always something out there that they can offer as they have offered me Radiotherapy for pain as u struggle with chemo it makes me so ill
Please keep positive I know its hard let us know how you get on after the scans and that , but if in the meantime you want to chat I am here
Take care
Jimbobs
What stage are you my lovely?
My husband is stage 2 bowel. He should be ok. My friend has stage 4 cancer, and like many on here has been told it’s not cure-able. She’s been here post stage 4 diagnosis nearly 10 years now, taking drugs for sure but she’s tried a new radiotherapy and it’s shrunk some of the clusters. There is always hope. She is living man! A good life! A normal life! Stage 4 isn’t the sentence it once perhaps was. We have to have faith. Like you I imagine the worst. Sometimes life surprises us all with small miracles xxx
Thank you . I’m glad your able to have something different to help with the pain .
it helps to know it’s manageable
That’s wonderful news and so inspiring
thank you for sharing . I guess it’s just such a shock . Especially as I was up to date with my colonoscopy. So glad your husband is going to be ok xx
You make perfect sense . Thank you for your response. That helps a lot . I don’t know size of liver tumours . They said two spots . Need an mri scan to look deeper
I’m confused by drs . One being optimistic and one being fairly negative
obviously they were not the specialists
but found it very upsetting .
again thank you for your support xx
The language and tone is very upsetting for people initially. I think it is pretty universal as they are trying to ensure people fully understand! I personally think it also should contain references to the group of people that continue to do well despite a stage 4 diagnosis as it is also part of the science and reassure that people are rescanned and additional intervention added where possible. That to me is the complete story !
However that can also change as I remember after one scan result when things started going in a better direction I totally noticed more positive approaches! I guess until they see the scans they remain guarded until they get a better feel for you as an individual!
My mum took that part hard as well as she felt they could treat but not predict her own response so she banned all prognosis talk as she felt it was not specific to herself !
Take care ,
Court
Helpline Number 0808 808 0000
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