Hi all,
My mum underwent surgery to remove a stage 4 tumour in her bowel and after a gruelling 5 weeks in hospital she was finally discharged. Since coming back home she's been experiencing fatigue in her legs which stops her from sitting for more than a few minutes at a time. She ends up pacing all day which totally wears her out. When she does sit, her legs shake uncontrollably.
Some nurses think it's a side effect of her medication, others muscle loss. She's now been prescribed quinine sulfate but has yet to see results. She's now eating a good amount (lots of protein too) so I would imagine this would help with muscle regrowth.
Has anyone else experienced this? Not being able to sit is really harming her quality of life. Her chemo was even delayed because she cannot sit long enough for the treatment.
Many thanks.
Hi Highskies
I have to be honest and say I have never heard of this before ! It sounds very uncomfortable indeed and your mum has had quite a rough time there !
I think I would be wanting a more specialist dr to have a look at her ! You might want to speak to her GP about getting her referred. My mum Had quinine for muscle spasm !
Your helpline staff might be able to make some suggestions 0808 808 0000 . They have access to Macmillan nurses !
Take care ,
Court
Helpline Number 0808 808 0000
Hi Highskies, how horrible for your mum. It could be medication, and the team could help there. It happened to me, and it was due to low serum iron despite a normal HB. Two infusions of iron solved the problem. You really need a dr to sort this out. Good luck.
Onwards and flatwards (don't do hills) and keep walking if you can!
Hi seaspirit44, that's really good to know thank you, we will call the Dr tomorrow for clarity.
I have to say it was the cardiologist ,whom I was seeing for hypertension, who spotted it.
Onwards and flatwards (don't do hills) and keep walking if you can!
That's very helpful to know thank you as my mum has high blood pressure and takes medication for it.
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