First chemo

Hi 

I will try the milk, I'll try anything lol!

Thankyou

Hi lizzie Ann

I totally agree with you 

Karen x 

It's definitely about accepting that I chose to be on the tablets and so to go with that. I am currently thinking of. name for them. My tumour was Bert as I imagines it to be quite old and not very active! Chemo I want to be efficient but kind. So I'm going down the women's name this time. Currently thinking of Barbarella or Whoopi, but still mulling it over. Honestly just trying to find ways to ease acceptance. I've been thinking about Christmas as a marker too, fingers crossed it will all go to plan and we'll be on our last IV on 22nd November. 

That's a great thought!

Yep, happy to keep in touch and see how it's going 

Beth x

Hi Beth sorry late reply, the system kept chucking me out!!! Name it whatever you fancy will help!! Try godzilla, she turned out to be a mommy hell of a destroyer!!!! 

Dates sound good we'll get there although did have mini melt down last night ‍♀️ just get overwhelmed and piddled off if I'm honest ‍♀️‍♀️ keep in touch

Karen x

Thanks Sappy for sharing, you will get through this, during my journey it feels like it’s getting better as the chemo sessions progress. This platform has really helped me know that I’m not alone on this journey.

I had plaster issues as well and I asked nurses not to use alcohol and they’ve now started using a different one and it helps. The nurses I have are really attentive and really want to make sure you’re comfortable so do let them know 

Thankyou Nyanyen38

You're right it is easier knowing you can talk or in my case moan ‍♀️to  people who will understand,. How horrible is this we have to go through though! I know it's too late for us but I hope there will be a breakthrough to make this easier on the way you feel physically, so mentally it becomes easier too!

It does get easy, make sure you rest when you feel tired. I have my 4th chemo on Wednesday… I’m on folfox 6 sessions to shrink the tumour then surgery.

 I’ve been struggling with fatigue and stiff hands but finding ways to manage and rest and on good days plan little treats for yourself it makes the journey bearable. We got this!

Oh my, I feel a wimp! I need to get a grip, I lost my sense of positivity!!

Take care, I need to get back on board the we've got this bus!!!!! 

Hi Lizzieannie....reading your post....I've been on the same treatment...although I wasn't able to have the 4 rounds of capox...only managed 2....had all those horrible side effects you're getting...and when I asked for a reduced dose....it was stopped instead...but I then went on to the next stage of chemoradiotherapy .....that's now finished....and nearly all side effects gone....just the anxiety of what's next....but I was interested to see you have a daughter in America .....does she live there? I too have a daughter living in America...California....and it's been really hard not being able to visit...or her visit us...what with my rectal cancer and the covid and travel restrictions as well.....but thank heavens for Skype ....which at least enables me to see and chat to her...and play little games with my grand daughter .....are you able to do the same? Wishing you all the best x

Hi again Sappy, I think the IV could be Godzilla! I've not had the best day today, just fed up and tired (but mostly through lack of a good night's sleep) so took myself off for a wee nap today, that helped. Tomorrow is another day.

Beth x