stoma diet

Mr Mac.after a long stay in hospital 1month and a husband that couldn't cook He was told that he had to learn fast.So I was taken in to the kitchen and told him what do from scratch The first and on time I had a slightly fall out over Macaroni cheese..He just wasn't fast and multitasking.I did have a bit of it   That was the start my cooking sitting on a Perch Chair. He had moved things about the units then had to move them back to my height.(no stretching)  won't do that again .

My consultant asked him if he could peel a grape ?If I wanted one he had to peel it .  

P.S. After 1 week and he was not allowed in the kitchen.Bless him .

                    Alaine

Have you tried looking on the iliostomy,colostomy and stoma  group

You may find some ideas about diet.also help for your wife to accept her stoma when she can see how people carry on with full normal lives

Just a thought

Kath

Hi Aldan. I can honestly say that I was hopeless in the kitchen up until last year however, I stuck with it and actually have improved a good bit but, as you will know, things change dramatically when there are now certain foodstuffs that are now a no no. Don't give in, it's your turn to put your feet up and I reckon your husband should give it another go at it and, who knows, he just might surprise you.

Take care

Thanks Kath. You and all the other lovely people on this forum have been great and have been giving me some great tips and I am not panicking just as much.

Take care

Hi Kath. I've asked her to look at other people's experiences for herself but I think she still hasn't came to terms with everything, particularly her stoma bag. I will certainly go on the sites you mentioned as there's loads of stuff I will need to know about

Take care and thanks

Maybe you could have a look,find a positive bio and suggest she has a read too.think mine is pretty positive

Kath

My dietary response since my ileostomy in November has been overwhelmingly positive. As advised, I took things slowly, step by step, gradually introducing foods and increasing portion size. Vegetables are no problem as long as they are well cooked and I chew every mouthful. Baked beans and mushy peas are fine so long as I mash them up. Fried foods and dairy also no problems, the same with all meats and fish. I've even had couple of curries. Most of my carbs are 'white' and low fibre (pasta, rice and bread) and I have swapped Weetabix for porridge at breakfast. Alcohol, in moderate quantities, has also been fine.

The only things I've steered clear of are raw salad/vegetables, sweetcorn, mushrooms, nuts and dried fruit.

It does make a difference at what time I eat, but having an evening meal at 6:30/7:00pm, I have to accept a trip to the toilet in the early hours is inevitable. The volume and consistency of output does vary a lot but it is easily manageable, and there is always Loperamide as a backup.

I know everyone is different, but I hope this positive post shows you can still enjoy your food with an ileostomy. Steak and chips, with carrots, cauliflower, sprouts and broccoli, with peppercorn sauce for tea. Cycle 4 of FOLFOX starts next week!

Thanks Mr.Mac I'm 1year on after the reversal and I'm now a better cook than ever before  .Only thing that I can't make is Meringue

     .Alaine

Thanks for your reply Spider. You seem to have adapted very well and continue to eat a "normal" diet which is great. I think my wife is struggling to come to terms with her stoma bag which unfortunately isn't reversible and the fact that, following her operations for both the bowel and the liver cancers, she will need to have another period of chemo  and wait to see if it has helped to stop the spread in her lungs. 

Take care

Thanks BlueBlue. I think it's just trying to come to terms with everything and I can fully understand why she is feeling so low and not eating. The fact that her stoma isn't reversible came as a bit of a shock to her and I don't think she realised just how much her surgeries would take out of her. Hopefully she will feel a little better as the days pass and will regain her spirit. 

Take care