Less then I year after treatment found deep submucosal invasion

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After chemoradiation for 5 weeks last year had complete response on my T3 no/mo tumour,Then incidental find 1 liver mett. Had radiofrequancy ablation.again  clear scans got them done on the 4 July. At my yearly colonoscopy  on the 22 August told I had cancerous polyp. After MDT  meeting inconclusive. Had another colonoscopy 6 September  and handed a report with the deep submucosal invasion was diognoise ,lots of medical terms that points to cancer.it refers to surgery or something called a endorotor. Haven’t a clue what that means. Has anyone been successfully treated what I’m thinking a reaccurance  I have got so depressed and anxious again. I’ve had what I think is sciatica and it has improved don’t have to take pain relief anymore, all sorts have been going through my brain. ,

  • Hi 

    I take it you are worried your sciatic might be attributed to your recent events ? I would phone your nurse and ask them for some reassurance as I think it will help manage the mind aspects of this !

    Given the size they are seeing and the fact your sciatic seems to be resolved I think you will find your team will be able to reassure you . 
    There is no point in suffering when they could help close that thought process down for you and give you some comfort !

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • hi Court thank you for replying. I think they  going to give me surgery for what they  found. I’m very much all over the place because I think it’s worse and can they do anything for me.


  • I think it’s entirely reasonable to feel traumatised by it as you have had endured a few difficult situations in a condensed period of time . But if you can stand back a little and hear the language they are using it sounds as though they anticipate surgery ! I think the fear aspect of it not having options overwhelms and blocks out the Hope a bit !

    That is a big part of the problem when there is a delay between diagnosis and treatment plan . Although everyone understands the need for MDTs etc it’s a harsh process on the mind !

    I think when it’s so small it can bring it’s own problems regarding how to resect it with minimal invasion but get good margins !

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thank you Court. At the  moment I am anxious and a bit debilitated with it. I just cant think of anything else. My team know I lost my sister inJanuary, and I think they get me in when they can. I was told who the surgeon is going to be if I needed surgery. I understand it is all the waiting. I started to do well, so I came off my antidepressants but I’m definitely back on them again. , thank you once again for always replying. Nelly 55

  • Sorry Court as I think i said before and I never have asked about what the margins are. I always mean to ask and when they talk about it I think they think you already know what it means! Nelly 55

  • The surgeon tries to creat a good ring around the tumour when they cut that is big enough to make sure there are no cancer cells involved . That’s called the margin !

    When it goes to pathology they examine the tissue right up to the edge to make sure there are no stray cells !

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Hi Court I always forget about margins, every time I see or hear margins I think of the drawing a line down a page thank you Nelly 55

  • Hi Court, I saw a couple of posts from you but I can’t find them. Thank you Court for replying, I can read them on my phone but not able  to text back. Different  email numbers.. I have got myself in a state because like a lot of people I don’t understand, I can’t believe two colonoscopies have come up with inconclusive. I have all sorts going through my mind. Is it spreading.? I think all this waiting is worrying to put it lightly. I have another visit to hypnotherapist tomorrow. I just can’t get this anxiety under control it’s awful. Sorry for rant. Nelly55 xx

  • Hi 

    Totally understandable, it takes time for anxiety to escalate and takes time for it to settle ! To calm the thoughts of a spread you can reassure yourself you have had recent scans that are inclined to pick up most issues and the area of concern in your bowel is very small ! 
    No consultant is concerned over any other area and that’s a positive !

    You did manage to get your anxiety under control before with the right support and remember your only human and this has been most taxing and prolonged ! 
    It is heading in a better direction .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thank you for replying.  I’m so upset with th anxiety being so high again. I just want to get started..I’m seeing the surgeon but won’t know yet what is going to happen because he might want me to have to have chemo which I’m going to see an oncologist, so I don’t think treatment is going to start for some time. I don’t know if it will be either or,, I don’t care as long as they get rid of it. Nelly55 xx