Dog wormer!

Honestly Hayleyc89 I think you should phone your oncologist or our helpline staff 0808 808 0000 . Immunotherapy is achieving so much and I would stick with proven scientific guidance not someone’s latest idea . I would not touch it given it’s a bowel tumour he has and you don’t want to end up ill before starting treatment.

People mean well, I have had the bizarre to the sublime suggested but my mum stuck with the well researched treatments. Someone even said to me it was good that my mum knew she had a shorter life span as she could go out and spend her money in the shops ! Another person handed in an alternative book on a specific diet . Had she followed either of these she would have not had enough money for the last twelve years and missed the opportunity to get the treatment that has given her the last twelve years .

If you look at some of the American cancer sites you will see threads of patients still clear three and four years into Immunotherapy treatment . To the point the dilemma is now when does the oncologist start to reduce treatment . Palliative care is very , very different to terminal care . Although they can’t guarantee a cure it can go on for years like in my mum’s situation . The full seven years of active treatment was classed as palliative care . 

But please speak to our helpline staff or his oncologist before trying anything like that .

Take care ,

Court 

Thank you Court I do not want him to try anything that isn't given to him from a medical professional I know people do mean well but it's really frustrating I wish people would stop putting things in he's head and just let the professional team treat him with things that are scientifically proven! I have read really good things about the immunotherapy so personally I just want him to try that and nothing else. X

Hi Hayleyc89

I shall ask the community team if they have access to any information for you !

Take care ,

Court 

Thank you Court. Really finding things difficult at the moment x

I totally understand. Someone told my mum to cut out all dairy products. No idea why . She promptly lost three stones and her weight was dangerously low whilst on chemo ! Of course they weren’t around to help put  that right !

I knew they were all coming from a good place but it left me with more to deal with when I least needed it ! 

I have asked the team and will let you know if they come up with anything !

Court 

Thank you so much. I have emailed he's nurse and told her that he is contemplating taking it I'm hoping she has some words of advice for him too. I'm sure if there was some kind of miracle cure such as dog wormer or cbd oil then so many people wouldn't be suffering from this horrible disease :(

Hi Hayleyc89

I found a research article from a dr who admitted a lady with raised liver enzymes. These reduced just by going into hospital . The team spoke further with the family and discovered she had  self administered dog dewormer tablets . On removal in hospital her liver enzymes reduced . They concluded that it could have been the contributing factor . 
Hope that helps a bit .

Court 

Thank you court. I spoke to the oncologist too and he said under no circumstances is he to take the dog wormer! Hes agreed not to.

I'm so frustrated and angry at the moment I know people are trying to help but some suggestions are just ridiculous! X

Great to hear that Hayleyc89 I know it took a lot out of you to get this resolved but you have done a good thing . He is at a low point just now and people don’t understand he is far from being out of options in fact he has one of the best on the table . It’s a lack of understanding really !

It tires you and stretches your limited reserves further than it needs to be . But it’s full steam ahead and a good plan in place .

Take care. 

Court 

When you say he is far from being out of options what other options are available? We spoke to a nurse on Sunday and she told us he is terminal and to make every day count we took that as if immunotherapy was last option x