Immunotherapy

Hi Hayleyc89

I am so sorry to hear that and know what a blow we felt when my mum had an immediate recurrence. It took a bit of time to find some solid ground .

However covid has brought in access to Immunotherapy that was not available before so I am absolutely delighted to hear he is getting it . His team are working hard for him !

I will tag in   and Moi2 as I am sure you will draw some strength and encouragement from the benefits they have found from it . You could use the search function to read some of their posts !

 husband has just had the opportunity to move onto it as well and might be able to share some of the differences between this and chemo .

America has been using this for a few years and I have been watching the results so it’s great to see people here getting to use it too!

I think he might find it a lot easier to tolerate .

Sending him my all my support and know he responded well in the past and holding out for that again . Certainly my mum had less disease the second time and the treatment got back to work and pulled her away from it .

Take care ,

Court 

Thank you for your reply Court. I have been reading some really promising stories throughout the night. X

You will be needing a wee rest now ! Those lonely nights searching for Hope take it out of you. However there is a lot of Hope with Immunotherapy . This will hopefully pull this situation back under control !

It is so good he is a candidate for it .
Court  

Hi I had rightside of colon and full Histrectomy SEP 2018 no chemo all clear. Oct 2019 it's back in lungs abdominal cavity and shoulder. Inoperable totally devestated. Did watch and wait for 6 month Then started immunotherapy Nivolumab four weekly. I have been stable for 11 months and feel good, doing my things. Am on a 8week break from treatment at the moment, my family are visiting from Ibizand have a trip down south planed. I hope al goes well for your husband . Stay positive and strong

Hello Hayleyc89 I'm so sorry to hear your husband's reoccurrence. 

My husband has had his second cycle of immunotherapy.  He is having 480mg of Nivolumab  once every 4 weeks. Will your husband be having this? I believe there is also a trial for non msi patients who are offered this drug too.

So far he's found the treatment much kinder than chemotherapy,  in fact the first time he had his infusion he was wondering if anything should have been happening because he had no immediate effects.  He had some abdominal pain in the first evening but these were bearable. However since my husband still has his tumour situ, he suffered sharp stabbing pains in his tumour area which we were told was normal. This pain reduced after 2 weeks and now his mobility and energy levels have improved,  we've been able to go out for walks together. 

We have read and heard wonderful things about immunotherapy,  every person is individual but we pray and hope we  are able to one day share the same positive stories.

I hope your husband responds well to this treatment. warm wishes, thinking of you both

Xxx

Hi thank you for replying. We don't know what he will be having as yet as we were only told yesterday what the plan is going to be we are waiting for follow up appointments now. Thank you for sharing with me your husbands experience it means a lot. Xx

I am rather drained today x

Thank you for replying and sharing your story with me it is very reassuring to hear. I hope you have a lovely time with your family and enjoy your well deserved break away x

Hi Hayleyc89

I am very sorry to hear about your husbands cancer re occurring. It is always devastating to hear. 

I had a right hemicolectomy in April 2020. I had 6 out of 12 cycles of folfox which unfortunately made me very poorly and I had to stop. A scan after this showed that residual cells that were left on the duodenum had started to grow and I had a 1.5 inch tumour and activity in a lymph node in the abdomen. I then had 5.5 weeks of  radiotheraphy and 5fu  with a view to shrinking the tumour to make it operable, sadly this  had no effect whatsoever. I was told in December 2020 that I was now incurable. We were heartbroken.

My consultant decided to try Immunotheraphy as I had the correct cell type. After 3 fortnightly sessions of Nivolumab I was showing a positive response. The treatment continued and after a break of 5 weeks, when I had an op for bowel obstruction, I was told by the surgeon there was no visible cancer. I have now had 13 sessions and 2 scans. The latest showed no visible active cancer.

I have felt well on this treatment, my diabetes has escalated a bit and my thyroid function has dropped, but apart from this I feel very well. I have had 2 breaks away and have returned to work. 

I feel very fortunate and privileged to be given the opportunity to try this treatment and I am delighted that for me, it seems to have worked, although I do realise this can change at any time. I will carry on with the treatment for as long as my fabulous oncologist feels its is necessary. 

I hope so much that the treatment works for your husband too. I realise I am one of the lucky ones and for this I will be forever grateful and humbled.

Take care and please keep in touch.

Lots of love xx

Hi my husband will be having the same as your husband. How is your husband doing with it xx