Ilestomy reversal

FormerMember
FormerMember
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Just out of hospital after the loop reversal 10 days ago. My initial op was in Nov 2020 & didn’t require any chemo etc, was caught early.   Colon wasn’t happy & took a while to start producing poo, was only clear fluid initially.  My stomach is quite blotted & uncomfortable but I suspect this would be expected as the colon tries to settle. Looking for some help/advice from those who’ve been there. 

Is the distended stomach normal & does it settle eventually

Any suggestions for a good barrier cream to help stop the burning/pain when going  I’ve been using a barrier cream plus some germoleen  

suggestions on food to eat/not eat

any other things that would be good to know!!!

  • Hi Jmmac,  after my reversal I didn't experience any bloating or discomfort, produced small bits with liquid which gradually increased in density.  I was advised to stick to a low fibre diet, as with the stoma, and then gradually introduce fibre. Eight months now after the reversal I basically eat anything. So I can only suggest introducing new things one at a time and see how they go,  I also take probiotics as my reversal was a year after the main op and I wanted to help repopulate the bacteria.

    Its a bit of a try things and see how it goes.  For cream, I didn't have too much of a problem but did use Sudacream if I did.

    If the discomfort continues I would try to get hold of your back up team.

    All the best, John

  • FormerMember
    FormerMember in reply to crankshaft

    Thanks for that. I’m hoping most people have a similar experience as you’ve had. I think mines was a bit complicated because the colon went to sleep, as they called it & hopefully things will settle down in a week or two. 
    Did you have a lower anterior resection? or was it higher up?  think that can make a difference. 
    Unfortunately you don’t read about many successful reversals on these type of sites… usually it’s about problems, as you’d expect.
     

  • I had the problem with the ileus when I had my lower anterior resection and had to stay in for eleven days, but the reversal went ok and I was only in for two.

    You do hear from people who have problems but I think that there are more who get to a new 'normal' that they are happy to accept against the bag. For instance, this weekend I am at a hotel with a car club on our first event for almost two years, and not having to worry unduly about my innards. 

    I hope that with time you get a good outcome as well.

  • FormerMember
    FormerMember in reply to crankshaft

    Hope you’ve had a great weekend & the weather has been good. 
    it’s good to hear a positive outcome. Here’s hoping I can report the same in the near future.