Had enough

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I had round 5 on Friday woke up sat morning sick as a dog took the meds to no avail Sunday exactly the same has pump disconnect yesterday still fel very sick its horrible.

I was diagnosed with stage 3 bowel cancer and had it all removed in jan, out of 26 one node was suspicious so they decided to do mop up as a precaution.

I should be having 12 but it's playing havoc with my kidneys because I was on dialysis in 2019 had sepsis and kidneys shut down plus perforated bowel so had a right hemi they told me no cancer was in bowel,then 2020 I had a tumor grow out of my mucus fistula which was cancer it was retained in top part of sigmoid, so that was removed told all cancer removed I was cancer free even oncologist said I was cancer free.

I have suffered so much with this chemo I wasn't particularly healthy when entering it I have spoken to oncologist and I'm going to stop my quality of life is zero I feel constantly ill they have reduced dose I feel I need a good break to get fit and heal my body.

So thats it decision made call me mad call me weak but I'm not coping with this at all.

Thank-you for reading xx

Martina3 over 3 years ago

sorry to hear taht.

Needed time to heal is not mad, is not weak is just been human.

All the best

court over 3 years ago

I think you have been very wise HazG. You are far from weak you have the tougher end of side effects to navigate and I could see that from your posts ! You did extremely well to get as far along the process as you did !

As you say it’s time to let your body heal and recover !

Have you got a wee holiday planned ?

Take care ,

Court

Helpline Number 0808 808 0000

Kareno62 over 3 years ago

Hi HazG. As I read your post I was thinking that you needed to consider stopping this. There’s nothing mad or weak about protecting your quality of life and future. I had 2/17 lymph nodes affected but both were close to the tumour (I think they spread out in a chain-like effect?) so my oncologist did say that she wouldn’t be unduly worried if I didn’t make the chemo.

Time for some much deserved me time and treats I think but please keep in touch with us all on here and let us know how you’re doing?

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

HazG over 3 years ago

Thank you all for replying i really appreciate all your support.when people that no nothing about the situation keep saying you run tbr risk of it coming back.

No do I get number 6 and that's it or stop now at 5 I feel so rough we have horses which I love and I really want to get back to that with my daughter

Excuse typing I have claw hands at the moment !

Clarey03 over 3 years ago in reply to HazG

I don’t blame you at all it’s your decision ,it’s a tough one to make , you know your body , let your body heal xxxx good luck .

Gemmary over 3 years ago

Yes, been there, HazG, mine was different but around the halfway point I was going to chuck it in, so know your process. Good on you, its your life. I decided to 'just' do the next one, and limped through the remaining ones that way. But I was on a low dose so it was different, not necessarily easier, just different. Just never think, I wish I'd continued. If you've reached the end of the line, then that's it. No self recriminations. Stay safe.

Mptcranley over 3 years ago

Just wanted to let you know I’ve been through a similar experience. I had a total pelvic exenteration in January with colon, rectum, prostate and bladder all removed. Despite a successful surgery I was told I needed the mopping up chemo. I’m just about to start round 6 of 8 and I’ve requested a reduction in the dose, as it feels like it’s doing more harm than good. It’s really affecting my nerve endings and I feel permanently sick. I spent nearly 3 months recovering after the operation and chemo just makes me worse than ever. I hope the dose reduction helps.