Hi everyone!
Well, I have been absent rather a long time, but it has been a pretty rough ride for me. Let me see... I spent the whole of lockdown from March 2020 in total, solo, isolation. It kept me from any risk of infection, but had a terrible impact on my mental health. Just when things were looking up, and I was getting vaccinated - in the first round, as my GP is very good - I had some awful symptoms. I ended up spending two weeks in February back in hospital, with all sorts of nasty symptoms. The thought was it might be cancer returning, possibly in my stomach. As it turned out, it was a terrible infection, which caused my lungs to swell up. This in turn put a lot of constriction and pressure on other organs, and my gall bladder started to discharge into my stomach. It made me terribly sick. However, antibiotics finally fixed it. I was discharged.
Half an hour after returning home, I had a bad fall, and broke my hand. And was whisked right back to A&E. The upshot of this is that the doctors think my bones are breaking far too easily, and are going to be investigating me for osteopenia, or some other bone condtion, to explain this. Fun!
And since then, my insides have been rebelling. I now have back a LOT of the symptoms I had with the original cancer. Cramps, pain, urgency, feelings of blockages in my bowel, grey mucus, blood in stools... they're all back. I did have a colonoscopy in October last year, which was clear, but I am very well aware how quickly a tumour can grow. And my fatigue has rocketed again, and I just feel generally ill. So I have blood tests on Monday, screening to clear me for colonoscopy and CT scans. I know that I will be seen as quickly as is possible, but I am also very well aware that there is a HUGE backlog of cases thanks to the lockdown, and it is a major issue for cancer patients, because it means there are so many people needing immediate help, that even very urgent cases are experiencing long delays.
On top of all this, my father died earlier this month. It was a difficult time. The funeral was not too bad, but his flat was in a shocking state, and since he was totally incontinent when he was taken into hospital, and nobody went to his flat in two months, the inside is a reeking mess. Clearing it out is huge work, and I have not been able to contribute much help, as I am far too ill. In addition, it seems that despite him being executor for both my mother and grandmother over the past few years, he did not do much of the necessary work for that. So that now falls to his children. And the time period for registering deaths has expired for them, and it will cost us THOUSANDS to sort out their estates. And his estate is a total mess. He owes a LOT of money. Some can be written off - I do not believe we will be liable for the many thousands he has run up on credit cards. However, he didn't bother paying council tax for a very long time, there are debt collection agencies howling for blood, and he may well have been collecting the pensions for himself, my mother, and grandmother. And possibly spending them. All of which will have to be paid back by his inheritors, as those debts cannot be wiped off. In short, he has probably left us with many thousands of pounds worth of debt, and it is going to take far more than I or my siblings have available right now to clear it all. So we have all that landing at this time, too.
I am not doing well.
And I really need a holiday. Somewhere quiet, warm, and a very long way away from any of the stress that is trying to gnaw through what remains of my willpower.
Robin
stoatlordHi Robin. We’ll it’s lovely to hear from you but what a horrible time you’ve had. I really don’t know what to say on a practical level but if I could spirit somebody away onto a tropical island then you would be top of my list.
Have you thought of giving the nurses on here a ring just to talk and offload a bit? The number is 0808 808 00 00 and they’re there 7 days a week from 8-8.
In the meantime I’m sending you a massive gentle hug and I really hope life starts to improve for you. Please update us again soon after your tests?
Take care
Karen x
Hi Karen!
I very much appreciate the kind words! I am really wishing to be on that island. I've wanted to see Fiji all my life...
Talking to the nurses sounds like a very good plan. I may do that. I can't get hold of my support nurse very easily. I have to call and leave a message. messages are checked twice a day, and calls back done when time permits. Which is rarely, at the moment, as their unit is swamped and trying to fit in many more appointments than normal, just to clear the backlog.
I will certainly keep everybody appraised of the developments.
I sometimes have days when everything seems to be working OK, and think to myself... this must be imposter syndrome! I feel fine, I am imagining things, wasting the time of the medical people... then I have days like today, when I am stuck in the bathroom, doubled over in pain, and terrified to use a topical cream to soothe some of the pain as I know how excrutiatingly painful it will be for a while after applying it. Tumor or not, something IS definitely going wrong up inside my fundament, and it needs addressing!
I have a whole new notion of sympathy for Edward II...
Robin
x
So good to see your name pop up as ever but what a time you have had of it . That is awful to have to sort out the various estates . I would be completely lost at that .
Sorry you lost your dad . It has been quite a time to come through .
You do seem to have some underlying health issues too so I hope they can help you with that .
I am with Karen . Some sunshine for you would be wonderful ! We can dream !
Take care ,
Court
Helpline Number 0808 808 0000
Thank you! Always lovely to hear from you too!
My father had been very ill for some time, and he was just getting to the stage with Alzheimers that would mark the point where he was seriously affected by it. He was terrified of that, so in some way, this has been a blessing. He did not want to reach the stage where he had no memory, and no control.
My older brother is dealing with a lot of the administration issues - he is officially next of kin, and really, I am in no state to be handling this sort of thing. And my younger brother lives in Spain. With lockdown rules, he was not even permitted to come back for the funeral. I can rather sympathise - as you may recall, I could not go to my mother's funeral, being only a month or so after my surgery.
My older brother is a doctor, however, and he understands my medical position. He actually worked for a while on a colorectal surgical placement, so his knowledge of what is going on with me is considerable, and has been very useful. While I hate that he has to handle this without as much input from me as I would like to offer, he does at least grasp how ill I am, and the implications.
Robin
x
Hi, stoatlord, really sorry you've had such a rough time, both health wise, and probate wise, this latter has taken OH about 18 months to sort for his father, and that was relatively straightforward, setting up a trust was the awkward bit.
I hope you manage a holiday somewhere, I too have been shielding for 2020, just let out this year. Problem now is I'm wary of throwing it all away by going out! Try a local wood? I find a lot of peace in my local one, quiet and no-one around. Except I used to take my dog, but she died from a heart attack, and it is taking me a long time to get over it.
Anyhow, please take care, stay safe.
I am sorry, Gemmary. Loss of a beloved hound can be very distressing, this I know from experience.
SInce I cannot drive, I am mostly unable to go places like the local woods at the moment. I am just hanging on, hoping I can get away somewhere when this current batch of internal nastiness is dealt with.
I plan to stay safe. And hopefully, well, as soon as it can be arranged!
Robin
x
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