Partner has cancer in lymph node. Terrified.

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Hello I have posted on here a while ago and have been offline as had a lot going on with my new baby, my partner’s bowel cancer diagnosis at Christmas & chemo and unexpected passing of my mum, grandad all in space of 2020 - worst year of my whole entire life. 

My name is Debbie, my partner Liam has been diagnosed stage 4 colon cancer, he’s 39 - first complained pains in his abdomen in late November - went to A&E, suspected appendix but had it removed as child. Ct scan discovered a tumour went in for emergency operation in early December, against the doctors judgment and ended up removing his 30cm large bowel and a mass tumour same size as snooker ball and 4 of his lymph node all in one. Went off to be tested and came back cancerous - stage 4.

ct scan revealed that it has spread to one of his lymph node - had 6 cycles of chemo - to try shrink the cancer (last one is last week)

So today, earlier on Liam and I went to see his oncologist. The scan showed that it has not spread to other organs which is positive. So from a chemo perspective that has worked. However it has not stopped the lymph node near the kidney increasing by 10mm. Stopping his chemo for next 8 weeks. Going to have PET scan next week the an appointment with the surgeon with a view to taking it out. If he thinks it is a difficult op for him he may refer to Addenbrookes or London. Will need further chemo after that. This type of cancer will need managing moving forward and it is unlikely to be free from it completely, but we will have to wait and see.

also I don’t understand the 40% survival rate in 5 years? I’m refusing to go on goggle as it scares the hell out of me.

Has anybody experienced this? I’m so terrified for Liam because I have suffered enough heartbreaks and I don’t want to lose another loved one. 

We are getting married this July but am so worried - at the same time I’m trying to stay positive for his sake along with our 13 year old and 4 month old sons. 

would love to hear your experiences or advice.... sorry for a long message.

thank you

love Debbie xx

  • Hi Debbie, I so sorry to hear about  your partners cancer. I also feel like you about 2020. I don’t understand about the  5 year and the percentages. I’m glad you stay away from google, Karen 62 always gives that advice. Unfortunately I did google and made my already severe anxiety worse! I phoned the Macmillan line a lot, they are so helpful and caring. There are lot of very kind and knowledgeable people on this site. My heart goes out to you. I think that about percentages I know at my first consultation they went trough them, but I’m not going to pretend I understand any of it or just blocked it out. Congratulations with the wedding. Sending best wishes and hugs xx

  • Sorry I didn’t put about my experience with cancer. My diagnosis last year was firstly delayed by 3 months because of COVID. Had bowel cancer. Treated , in January this year had complete response. I had just lost my sister, so couldn’t enjoy the news. Then ct on a hernia a few weeks later found an incidental find of a 10mm mett on my liver. I’ve had radio frequency ablation on that.waiting results. It looks like it seems they are really looking after your partner I think you are one brave lady how you are coping with everything you have had to deal with in just a year. So it would be good to get some professional  help to unload a bit, as well as posting on here. Take care and hugs Nelly xx

  • Hi 

    Great to hear of your wedding plans after such a terrible time !

    This was helpful to me when I wrestled with the stats . The health economist use them for service provision planning but are not as helpful at predicting individual outcomes . Firstly it’s only his response that predicts his future . No one else’s stats contribute or can influence that . Bowel cancer remains very predominant in the elderly population and some are either very late diagnosis or too frail to endure any form of treatment . Their stats are not separated from people who are able to tolerate treatments . So it has to be interpreted in context . I have long since stopped paying attention to them . My mum is hitting twelve years since diagnosed and just got discharged from oncology. 
    I don’t blame you for a moment feeling concerned but be encouraged that not only is it operable but the surgeon is willing to refer on to others who are able to do more complex surgery . That’s great !

    Eventually my mum’s disease settled and the micro disease seemed to be eliminated.

    Take care and give your children a big hug from us ,

    Court 

    Helpline Number 0808 808 0000

  • Hi court - I’m very sorry but I am profoundly deaf and bsl signing is my first language and I’m not very good when it comes to big words... what does it exactly mean? 

    it’s such a brilliant news about your mum and. 12 years!!! That’s amazing and gives us all hope! 

    what’s your view about my partner’s situation is it similar as your mum? 

    Thank you re wedding and our kids xx

  • What is mett? 
    im sorry to hear about your sister. I honestly don’t know how I cope - I just manage to get out of bed and start my day... Im a worrier but never show it and I don’t really show my emotions much because like I said I need to stay positive for my family and especially Liam - I can’t even imagine how it feels for people like you and my partner having cancer inside it’s body. 
    I’m very lucky to have an amazing family support network and able to rely on them for now I’m coping.......

    so are you actually cleared from cancer apart from mett on liver? I really hope it is treatable for you?thank you for your time to message me xx

  • Hi Twinkles, mett is a shortened word I can’t spell the long one! They found a spot of cancer on my liver. I had this treatment called radio frequency ablation done on it, I get the results on Friday. Thank you for asking. I do find it hard to have been diagnosed with cancer. I do wish you all the best Nelly xx

  • Keeping my fingers and toes crossed for you on Friday! Keep us updated. 
    Thank you Debbie xx

  • Hi 

    I think how people respond to treatment is more important than the stats that included everyone . I can’t say how his future will  be as I am not qualified in that area but I think it’s really good news they are operating and that  gives hope !

    Hopefully things will settle for him .

    Mets is a short version of the medical word that means the cancer has spread . It much easier for everyone !Grinning.

    Hold onto the hope that he has treatment options and keeping well . 
    That’s good news .

    Hope this has been easier to read ! If I can help in any way please let me know .

    Court 

    Helpline Number 0808 808 0000

  • Thank you for clarifying this with me. I had a breakdown today as was so overwhelmed but now I’m feeling more optimistic... Liam is having his picc line removed on Tuesday for time being Pet scan on the Friday and already booked to see a surgeon on 8/6/21 if he’s able to remove the lymph node near the kidney and another colonoscopy - unsure why though... is it normal? 
    We are taking step by step and hang on to the hope with treatment options and other people’s positive stories.

    debbie 

  • Yes , I think when they are lining up for surgery they can do a battery of assessments . 
    So glad you are feeling a bit better. The bad days pop up and overwhelming they are . However you sound in a better place now ! 
    You will feel better when his surgery date comes through !

    Take care ,

    Court 

    Helpline Number 0808 808 0000