Scans during chemo

FormerMember
FormerMember
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Hi everyone, does anyone know about how often you have a CT scan during chemo I’m on 12 cycles of 5 fu and oxiplatin I’ve had the marker scan before I started it on the 13th of April and was wondering do you get another half way through or do you have to wait till the treatment ends which would be September. This terrible weathers not helping with the side affects! I’m feeling so low and I can’t keep burdening my family with thoughts because it upsets them. Thanks for any input xx

  • Hi  I seem to remember having one half way through as the oncologist was really busy so popped in to see me while I was having my IV! It may vary from hospital to hospital though so you could perhaps give your Colorectal Support Nurse a ring and see if she can advise you?

    Im sorry to hear that you’re struggling emotionally. Unfortunately chemo has quite a lot of side effects and a chilly day can exacerbate the cold touch and twitchy face. Have you thought about giving the nurses on here a ring for a chat on 0808 808 00 00? And don’t forget you can always just post on here for a moan/rant/get it off your chest. I used to worry about upsetting my husband if I was having a bad day but he said he got more upset worrying that I was bottling things up or there was something I wasn’t telling him and maybe it’s the same with your family?

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember

    Hi Cat Lou. Sorry to hear you're feeling low, which is totally understandable.  I hope my story cheers you up a bit.

    Last February I started the same chemo as you, after having  cytoreductive surgery and HIPEC. I didn't have any scans during the chemo, I had one 6 weeks after I had finished. 

    I am now being monitored,  3 monthly blood tests, 6 monthly scans and yearly colonoscopy.  All of these have been clear, no evidence of disease.

    I had quite a few side effects from the chemo, which I got help with. I know what you mean about burdening your family, but I'm sure they don't look at it that way.

    There is definitely light at the end of the tunnel,  remember this when you're lying in bed unable to sleep, and your head spinning. 

    If you want any more info, let me know.  Take care xxx

    Cathrine Raising hand tone1

  • FormerMember
    FormerMember in reply to Kareno62

    Thanks and I’ve just remembered I’ve got a phone call Tuesday so I’ll mention it then, I do talk to my daughters but my youngest daughter whose 30 always starts crying so it tends to stop me but as my husband says he’s got broad shoulders so he can take it. Xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Catherine, same name as me! Oh thank you so much, it’s seems as if we’re having the same treatment but opposite way round because they’ve mentioned the same treatment but after the chemo, oh that’s so good to hear and I feel more optimistic now. So happy for you too and thank you xx

  • FormerMember
    FormerMember in reply to FormerMember

    I hope you do get to have that procedure once you've finished chemo. Does your hospital do it or would you have to go to a specialist centre? I had my operation at the Christie in Manchester,  Omer Aziz,  absolutely fantastic. Good luck with the rest of your treatment Fingers crossedMuscle

  • FormerMember
    FormerMember in reply to FormerMember

    Hi yes I’m at the Christie too but under a different consultant mr kampasaurses and I hope so too and thank you. Xx  

  • Hi Cat Lou, when first diagnosed I seemed ok but then got very anxious and low so I just want to send hugs to you. There are so many lovely and knowledgeable people on this site. Karen62 always tells people to stay away from dr. Google. She is so right, I think my anxiety heightened because I was impatient for answers but instead did the opposite. Best wishes to you Nelly1955.xx

  • FormerMember
    FormerMember in reply to Nelly1955

    Hi thank you for the reply and yes so true about Google. I’m going to try a be a bit more positive now and get through this treatment. All the best Cat xx