Worried about recurrence

FormerMember
FormerMember
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Hiya.

I was diagnosed with stage 2 bowel cancer (T3N0M0) in Jan 2019 aged 38. Had a Lower Anterior Resection. No lymph node involvement and therefore no adjuvant chemo needed. My tumour was less than 50% mucinous adenocarcinoma and so I am on a robust surveillance plan.

My last CT scan was in Jan and was all clear.  I am very lucky to feel that thr surgery has been curative.

Fast forward to now. Over the last few weeks I have been experiencing occasional constipation (harder to pass but the stool is soft) despite drinking 3 litres of water a day, exercising a lot and eating a high fibre diet. This week I had 3 occasions of blood on the toilet paper after wiping and tonight I am experiencing griping pain in the tummy. I feel really triggered. It has brought be back to my symptoms that I had for 8 mths and I always thought it was something I ate.

I have contacted GP and he's going to give me an examination, FIT test and blood test on Monday and he said it's unlikely if my scan was clear 4 mths ago that it is a recurrence. But I am so worried. I have started to put cancer behind me and truly believed I was one of the lucky one to have had an early diagnosis and I feel so worried that it might be back. I know the chances are only 5-10% of recurrence but my risk of getting bowel cancer at age 38 was so small I can't really rely on statistics.

I have two small children and I keep thinking omg what if it has come back

  • Hi  and I’m sorry to hear that you’re so worried. Unfortunately having had cancer always leaves that nasty lingering thought lurking at the back of your mind. As the doctor says it’s unlikely with the scan in January being clear but it’s good that you’re being checked out. The bleeding could be a side effect of the constipation - it could be piles or a small tear? The griping stomach pains may be due to too much fibre or just the stress and worry that you’re experiencing at the minute? Have you changed your diet recently? I’ve started having salads as the weathers got warmer and that’s had a effect in my bowels - it might be worth keeping a food diary for a couple of weeks?

    Ive attached a link to a paper about feelings that we all have after treatment finishes which may help

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    Please let us know how you get on

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember

    HI Magsarama, 

    I know it is so hard trying  not to think the worst. I have been there too, and now looking back, it did me no favours. Stress is also not good for the body or the mind, and I think the stress of 2020 and a shielding husband actually aggravated my tumour. My operation this January, was successful and I am now halfway through oral chemo, which is going really well. I am 46 with two young boys and honestly just try to stay positive and to think that it is behind me. It is the only way I can function properly. Too many "what if's" just drove me insane, I had to work hard mentally to stop those negative and mostly futile thoughts. 

    There will also be a wait after your tests, try to remain positive and keep us posted. Wishing you all the best. Take care.