Playing the waiting game

FormerMember
FormerMember
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Hi, currently waiting for a liver mri after being told my rectal cancer had spread. Mri this Friday and oncology app the Tues after, feels like an age of waiting. During this time I am experiencing quite severe pain around my bum, is this a normal thing for people with rectal cancer and is there a plan for helping? My docs had me on tramadol, had no effect, now on Targinet and oral morphine. Just feel I would be coping mentally a lot better if I didn't have this physical soreness, can anyone relate or advise? Xx

  • Hi 

    I can’t shed any light on the pain aspect but hope your new meds are getting to work .

    A long week for sure but all I can say whilst this part seems to drag out with the additional testing they seem to speed up once all the information is gathered and suddenly you have a date to start treatment . After all the waiting around that part took us by surprise.

    Just wanted to wish you all the best . If the pain does not subside the NHS does have pain clinics you could ask to be referred to but hopefully your team should be able to get on top of it soon .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember

    My mum had rectal cancer and was in a lot of pain in her bottom. She took 30mg Morphine tablets in the morning and 30mg at night and oramorph in between if needed. Keep on at the drs about the pain. My mum started ended up with a fistular which was infected

  • FormerMember
    FormerMember in reply to FormerMember

    Hiya Daisydoo, thanks so much for that info, to be honest I had never even heard of a fistula before. Since I posted I am now on 20ng of targinact and also the oral morphine as and when needed. Certainly not pain-free, but helping a bit. Thanks for your reply xx