Hi so on the 3rd November my husband had a biopsy on he's tumor and a month later he's colorectal nurse emailed us to say that there were no mutations and he doesn't have lynch syndrome so our children won't need early screenings in later life so we thought oh brilliant this is good news anyway today we had a phone call appointment with the oncologist who said to us that the histology report was back and that unfortunately the cancer is lynch and our children will need need be screened and my husband will have to attend a specialist clinic, we told the oncologist that the colorectal nurse had told us in December that it wasn't lynch and the oncologist basically said well it is and I have the report infront of me so we don't have a clue where the colorectal nurse got her information from or if there has been some sort of mix up with results but this is quite frustrating and annoying not knowing if the kids will need to be screened earlier or not.
