Frustrated

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On the 31st October my husband was diagnosed with bowel cancer he was told treatment would start pretty much straight away after having a stent put in. It's been almost 6 weeks since diagnosis and hSobe still hasn't started treatment he had a dpd definicy test 2 weeks ago we were told results would be back in a weeks time only to find out yesterday that the hospital have incorrectly labelled he's bloods and there is now no record of him even going for he's bloods done so he has to have the test done again he has had terrible treatment right from the start he was sent home from A&E twice being tSobd he was constipated even though a blockage had been identified on he's xray but no further investigation was done on he's 3rd visit to A&E in excruciating pain severely dehydrated and vomiting consSobntly they actually took him seriously and fully investigated him that's when the cancer was found. It is so frustrating that 6 weeks ago our lives were turned upside down and still not started treatSobnt it's terrifying as they have told us the tumor is in several lymph nodes and also touching he's pancreas yet nothing is being done my husband is really struggling with he's mental health he's bece very angry and irritable which is understanding but it is so difficult to deal with as we also have 5 children Sob

  • I can't understand why there is emojis in my text but I hope it still makes sense

  • FormerMember
    FormerMember

    Hi Hayley,

    Very sorry to hear about your news.

    I would say for us (and several others on here) the worst time was that initial period after discovery. Similar to you we didn't start for what seemed like an eternity. Issues with getting port fitted, then infections, every delay felt like a blow to my spirits. However, it get much easier when you get started. There are still hiccups and delays but we've come to realise this is a condition we want to live with and fight as long as possible now we're on this journey. Sounds weird to say that now (only 6 months in ourselves) but a week here or there starts to make less difference in the scheme of things. Just be aware that the treatment itself can have worse side effects than the cancer, so it's really important that you husband is ready for it. We trust the professionals as much as we can even though it's so hard to keep spirits up at times. We have 3 young children too, so they are often the best distraction.

  • Thank you for your reply it certainly does feel like an eternity