My husband Dave has his port on Wednesday next week, then chemo (Folfoxiri), the next day. The oncologist has said his cancer is not curable, just treatable, so this is palliative chemo. We've been keeping positive, having seen stories of palliative people, responding well and becoming cancer free and living long lives. Another blow today, his haemoglobin is too low at 8.3 so he has to have a blood transfusion on Monday, this has tipped him into a very worried state. Is this a normal thing, just seems one thing after another, he just can't catch a break? Love Frances xx
Hi ,
He actually has a good team there and chemo is a big cycle of assessing blood and often a chemo rest week to get the bloods back up . It’s the nature of the process . They would want him starting from a stronger position . Quite a lot of people are anaemic due to the tumour in the bowel .
They are quick to attend to this so that is a good thing .
I spent the whole of one car journey preparing my mum that she probably would not get chemo as I had noticed her platelets were really low . She went in mentally prepared only to discover they had a big jump upwards !!! Why , we have no idea ! We learnt to accept it all as part of the process . They scrutinise the bloods and do what is needed.
Take care ,
Court
Helpline Number 0808 808 0000
Hi Court, I do feel the team are definitely doing their utmost, they have been so on the ball, I've said to him, it's going to make him feel better, and it will give him a stronger start. I am so pleased they have sorted ahead of chemo, I can't imagine how it would have impacted him, if he couldn't get the treatment on the day. They've even organised chemo and the blood transfusion around school pick up times for us, they've been brilliant. It's so hard being on the sidelines. Hope your mum is keeping well, love Frances x
Luckily I never needed one but I often saw people having blood transfusions before their chemo at my chemo unit so I think that it is fairly common. Also as you say it should have a fairly instant effect on his health so win win.
Thanks Nicky, also gives him a sneek preview of the unit and nurses ahead of Thursday, hopefully less daunting. How very true, we are living in fear, need to stop wasting time, and live in the moment, love Frances xx
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