Husbands T4 colon cancer impacting on pancreas

Hi ,

Did you get the name of the specialist nurse attached to the surgeon ? You could always give them or your GP a call . They will have it all in writing too . It is very important to feel as though you have an understanding and I think we all relate to the many questions that flood your mind afterwards. There is so much going on during the consultation it’s hard to take everything in . 
Our helpline staff would also help  unpick some of the terminology. 0808 808 0000

Everything is quite tightly packed in there so I have sat through a few meetings where they use vocabulary that seems to imply pressing against , abutting another structure . However when it’s actually in another organ they have been quite clear about that . 

Lymph nodes near the primary tumour are often removed during surgery. The number of positive nodes can help determine if a person needs chemo afterwards . 

It is a lot of information to take in and you really need to know the details to answer it properly so I would not hesitate to contact your team again . We found the GP very helpful and very much part of your team . 

Take care ,

Court 

This is the results of he's CT scan I don't understand all the medical jargon can you simplify it for me please 

Hi ,

 . Macmillan protects your identity! So I think they will take it down . 

If you phone the helpline 0808 808 0000 they will do that for you . Think it said they could see no invasion ! 

I would hold onto that ! It’s all so stressful but they will help you .

Court 

He's having 5fu, oxaliplatin and irinotecan can anyone please tell me if they have had these drugs and did they work and also what side effects did everyone have I know everyone is different and our bodies react differently but I'm just trying to get an idea of how things might go. 

https://www.bowelcanceruk.org.uk/about-bowel-cancer/treatment/chemotherapy/chemotherapy-side-effects/

This covers most of the side effects from bowel cancer chemotherapy . 

My mum has never had the Irinotecan but she did have the other components . They worked incredibly well for her and her scan report had significant shrinkage on it . She had side effects but the hospital gave her help and guidance on how to manage them. She had her dose adjusted and that reduced a lot of the side effects .

You can get cold sensitivity with the oxy part and neuropathy but they keep a close eye on it . My mum wore Cotten gloves and drank liquids at room temperature. No cold drink straight out the fridge . I just added a drop of hot water . 
She sometimes had colic type pains in her tummy but got meds to help with it . 
Her taste was altered for a while but it came back . 
She had hair thinning   but still had a lot and used a lot of creams for the skin on her hands and feet . 
She wrapped up well coming out the chemo unit so the cold air could not get to her mouth .

These were the main ones she encountered. But they have a meeting before each cycle to take your bloods , get feedback on how you are getting on . Make any adjustments. They are good at taking care of the person going through treatment and give you support and guidance . After the first one it got easier to anticipate what to go and got a bit of confidence in the process .

Take care ,

Court 

Thank you so much for your reply