Hi, hope that everyone is doing good. I have been lurking on this page since last year, and have put off replying to posts or even typing up my own post.
I was diagnosed with colon cancer beginning of July 2019, five days later had emergency surgery due to a complete blockage in the Sigmoid. Sigmoid plus tumour and 20 lymph nodes removed. 4/20 lymph nodes had signs of cancer. I had eight weeks recovery from the surgery, and then started on Folfox chemo beginning of September. A total of 12 cycles and finished last cycle in March 2020 (a week before Boris announced lockdown)
Due to the Covid pandemic I did not have my follow up tests until October, which was seven months since finishing chemo. I had a CT scan and then a PET scan two weeks later. The scan results back, and surgeon that initially operated on me had handed me over to another surgeon, as the scans shown two nodules on the left lung, one more nodule than was shown on the scans I had half way through chemo. The surgeon is talking about the possibility of burning these nodules off. So, I play the waiting game until I get a date for that.
I am so drained and tired of it all now. I am almost on my own as both my sons have lives of their own. My youngest son (sons are 28 and 33) is the only one still at home, although he is hardly ever here, as he is with his girlfriend and they are expecting a baby next year.
Sorry for venting so much and apologies for the long post.
A really big welcome to the forum. I am so happy you were able to join in the discussion today but not for the reasons that brought you to us . For some reason I can’t explain I was knocked sideways when I heard my mum needed treatment on her lung . More so than her liver . However it turned out to be a much easier process in the long run .
I take it they are considering Radio frequency Ablation so I have included Marianne’s account and I will tag her in to perhaps go through this with you . Reducing the fear is half the battle and knowing what can be achieved really helps .
Enduring all this during Covid is another layer of stress but we are here for you to assist you through this . No wonder you feel weary . But we are here for you and you have joined us now and hopefully we can assist you through this .
Also remember the helpline staff 0808 808 0000 are more than happy to chat through any aspect of care especially when it all feels burdensome.
Take special care ,
Court
Helpline Number 0808 808 0000
Thanks for tagging me Court...I will certainly do so later today...Just off for my CT Scan! x
All the very best Marianne26. Hope it goes smoothly .
Court
Helpline Number 0808 808 0000
Hi Dovey 66
I had a left Hemicolectomy in May '19, & had no Chemo. following it. However, in March this year, I had a CT Scan, followed by a PET Scan, which showed two small nodules in my right upper lung lobe. 5mm & 3.5mm. I then had Capecitabine Chemo Tabs for 6mths. (I refused the infusion part, for fear of Neuropathy in hands...because I'm an artist.) Fortunately, both nodules shrank a fair bit & I was able to have the Lung Ablation procedure last month at Ryl. Bournemouth Hosp. (This is what 'burning out' means.) The nodules have to be under a certain measurement, & must be in a place where no major arteries/ veins will be affected. If this has been offered to you....then I imagine that you fit the right criteria for the Op. It's very much a non invasive procedure (compared to Lung surgery.) You stay overnight in the Hospital, & if all is well, you are discharged the following day. You can choose to either have sedation or anaesthetic. Much as I dislike anaesthetic...I chose that route, as I was nervous about having a panic attack & not being able to lie perfectly still....which obviously, you have to do!! They insert long needles, which produce microwaves to the area to 'ablate.' There are no stitches involved...(.I just had two very minute puncture marks, but was able to remove the plasters the following day.) & in my experience, there was no pain whatsoever, so you can resume 'normal' life after being discharged. Not all hospitals in the UK carry out this procedure....as it's still relatively new. (20 years.) Whereas, in the US it is more widely practised. It's also not 100% effective in every case...however, it can be performed many times if necessary!
A month after the procedure, you have a CT Scan for the results....& funny enough, I have not long returned home from mine this morning! & now I have the weeks' wait - until I see my Oncologist next week for the results. (Always a worrying time.)
I also live on my own, & yes, the whole cancer thing is a very very hard journey, but if it means a cure...then we have to go through all these procedures.
Hang on in there....& if it's been offered to you...go for it, as it's very easy. Anymore questions/ advice, don't hesitate to ask!
& I will of course post my results when I get them next week!
Best wishes
Marianne
Hi Marianne, thank you for letting me know about this procedure and what is involved. The surgeon did briefly explain it to me in a phone consultation a few weeks back. I got the letter this morning with the date of my pre op and it is on the 4th December. So hopefully I will find out more then. Then hopefully once that is done, I will get a letter for the ablation.
Hope that you get good results from the CT.
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