37 year old husband diagnosed with T4N1M0 colon cancer

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Hi on the 31st October my husband was diagnosed with T4N1M0 colon cancer we have been told the cancer is very close to he's pancreas and he will be having neoadjuvant chemotherapy to shrink the tumor and then having surgery to remove the tumor I am just wondering if anyone has experienced this kind of cancer. I am full of anxiety as we have 5 children and we have both been signed off work sick following he's diagnosis I am worried how everything will affect our children and I just don't know if he's symptoms are normal for the cancer he has funny feelings in he's bladder, headaches and testicular pain I have tried to contact he's nurse but had no answer :( he is also having terrible night sweats

  • Hi  Welcome to the forum but very sorry to hear about your husband. My mum had neoadjuvant chemotherapy. It was primarily due to a secondary spread ( which your husband does not have ) but her primary tumour was in situ the whole time . It was amazing to see the shrinkage in the post chemo scans and lined her up nicely for surgery . Whilst it would have been nice to have surgery right at the beginning it has been a good long term plan .

    The night sweats are quite  common with cancer .The body may be trying to fight the cancer or alter the hormones . I think there are a few reasons to cause it but it’s a know indicator . 
    You might also like to contact our helpline staff 0808 808 0000 as they might be able to give you more information on the symptoms . I will have a look around and see if I can find out more information for you .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thank you for replying. I have spoke to the helpline about various things and they have been amazing the treatment plan sounds reassuring too I just want him to get he's treatment ASAP as I feel once we know when things are happening we can move forward. 

  • That is so true . It makes such a difference to feel it’s being actively treated . 
    I actually brought my mum to live with me during chemo and my two children were young at the time . They were exposed to the process and with the right information they were ok with processing the information. But it was a grandparent not a parent . What I have noticed now they are both adults . They are really empathetic to others . I often wonder if it had something to do with it .

    Glad the helpline has been good for you . Always good to hear when you are recommending it .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Our children are 12, 9, 7,5 and 2 so our eldest daughter is really feeling it whereas the younger ones dont fully understand they can't understand how daddy is so poorly when he doesn't look poorly I have got amazing support from the kids school and I'm doing my best to keep things as normal as possible but it is so hard when you just want to hide away xx

  • Totally understand that . Kids don’t give you that option either . I remember one lady saying the shower was the only place where she could let out her emotions .

    Great to hear the schools have been great . 
    I remember giving this big explanation that gran had bad cells . My oldest sons reading improved a lot that year and following an emergency admission to hospital I had to take them with me . As we were walking into the hospital he noticed the signpost and asked me why I did not tell him about cancer ! It’s difficult with the range of ages getting it right for each one but look what you have achieved already . You have already got that support going for them and making sure they are encouraged to talk through this . Make sure you too have this . Even a quiet cup of coffee and ten minutes to give yourself permission to catch up with how your feeling yourself . I used to encourage people to still meet a friend for half an hour . It’s really important for the duration. 
    Not sure what sort of restrictions you have and that adds a whole different layer of infection now but even a phone call with a friend so you get some support .

    take care ,

    Court 

    Helpline Number 0808 808 0000

  • I have got great support I'm very fortunate Blush it all became a bit more real yesterday as we had an appointment with the surgeon who told usy husband will be having 6 months of chemo followed by surgery to remove the tumor then chemo again after surgery its all very worrying and I know he is going to be so poorly and I'm scared x

  • Hi Hayleyc89 I’m sorry to hear about your husband’s diagnosis. My cancer hospital has a nurse that works with  children and parents when needed and she has provided me with information on good websites and books about cancer for my 13 year old. She has  also offered to become more involved with the family if needed.  My daughter’s school has also offered counselling. I am thinking of you. Take care.