Just diagnosed

, welcome to a group you'd rather not join! Read my profile by clicking on my name, my history might help. They will do their best for you, and you should be given a nurse practitioner who will answer any questions when you think of them! As to the worry about it coming out in bits and possible spread, that is what adjuvant chemo is for, so all is not lost. I haven't necessarily said all this in the best way, but I do wish you well, (((hugs)))

Thanks Gemmary.  I had no one allocated yet.   Just date for next surgery in three weeks.  Don’t even know termology yet.  Consultant said that decisions will be made re chemo after this surgery.   I feel very ignorant about cancer but i guess I’ll have to learn fast.  I will read your profile.   Also learning how to navigate these pages.    Hope you are well. Xx

Gemmary . Sorry I didn’t know to tag you.  May I ask what the add aspirin trial was?

To tag you type an @   then the name, it should give you a list and you  click on the right one.

The trial is for a variety of cancers, bowel being one. They noticed that heart patients on aspirin tended to have lower cancer return rates, so about 7years ago they started a trial. You either get a placebo, 100mg or 300mg of aspirin in a double blind setting so no-one knows, but could find out if necessary. You take 100mg of aspirin for 8 weeks before, so they can check your tolerance, and the trial starts just after treatment finishes. In my case chemo stopped mid Dec and the trial started on 10Jan. I'm on it for 5 years. Not all hospitals are in the trial, but I couldn't see a reason not to join it, if it doesn't help me it'll help others. And you get longer monitoring as they have to keep an eye on you for the 5 years! Which might be a blessing or not, as there are a few more tests/ scans to worry about!!

Any questions you have, ask as someone will usually answer, not everyone has the same treatment but there is often some common ground. If you have specific questions ask the Macmillan helpline, they are very good.

Stay safe

Hi 

Welcome to the forum . I think it is only human to have such thoughts about spread but I would not have thought it was anymore likely than when it was in situ . The other thing to consider is it may literally only be a few margin cells remaining which will be fully removed very soon . 
My mum had a tumour accidentally resected through the middle and then left for three months to grow . It actually did not cause any further spread .

My mum had a significant spread at diagnosis and is still here 11 years later . I think we have had every negative thought possible with cancer but what we do is remind ourselves it’s not a fact but a fear we are experiencing, induced by extreme and justifiable anxiety. But it is not currently a reality. Be very kind to yourself . It’s a tough time for you but it will improve . 
Take special care ,

Court 

court. Thank you for posting this.  At this time every positive story is of such help to me.  I’m glad to hear you mum is doing well.   Long may that continue. Xx

I held onto the Hope from positive stories too . And any time is caught up with me I would go back and read them again and again .

Take care ,

Court 

Hi Bowelbehavingbadly

Hello and welcome to the forum.

This is an extremely stressful and frightening time for you.  The waiting is so hard and it must be extra stressful as you now need another op.  Hopefully the surgery will be carried out soon.

In 2011 I had  surgery, for colon cancer and  they also removed  surrounding lymph nodes and I assume that they will remove lymph nodes during your next op, and they will then be able to see if cancer has got through into the lymph nodes.  Out of 23 of my lymph nodes they found 2 or 3  contained traces of cancer and so I was advised to have chemo

We all worry about spread but so much more is known about cancer now and I’m pleased to see that you are on the “aspirin trial”  There has been a lot of positive talk about this for the last few years and it would be wonderful if such a cheap medication could help prevent some cancers and help other conditions.

Take care,

VickiLynne

. Thanks for your comments.  It’s Gemmary that is on the aspirin trial not me.  My surgery is on 12 November and I shoulda know a week after this where I stand.  I’m praying that as all biopsies prior to tumour removal were precancerous that the staging of cancer might be early.  

Thank you Court. Xx