I dont really know what to say so i will say it all.
On boxing day 2019 i woke up with what felt like an upset stomach, when i went it was alot and was mostly blood, i went to A&E, waited 6 hours (still pooing blood in small amount at the time). After seeing someone from the surgical team i was placed on the surgery ward for 4 days. I recieved a CT scan but was discarged after the bleeding stopped and was told i would have a colonoscapy as an out patient. The CT scan showed no anomylies, i later didnt have a colonoscapy, just the endoscopy thing 9cant remeber the name) checking the left hand side of the colon. The nusrse came to see me and tell me with a smile that it was good news as they had found nothing, i was not happy and said if they havnt found the problem then souldnt they do more tests as clearly there is somethin wrong as that much blood loss dosnt just happen. She said it was up to the consultant to see if i needed any more tests and i left feeliong un helped and worried.
Skip to june 2020, the middle of lockdown.
it happened again though not as bad, waited 6 hours in A&E was examined and was told i could be kept in for observation or go home if i felt like i would be ok with that.i choose to go home as in the middle of a pandemic the last place i wanted to be was a hospital. He told me i would get a colonoscapy but the wait time was long due to lockdown.
I recieved a letter telling me i had a CT scan appointment at the begining of october. Starting september i had started to get a constant low pain in my abdomen, spoke to GP and told him if i take parecetamol it usually is ok but it is all the time, sometime a little worse,he said i was going to be checked for Coeliac disease. The day before my result i was called by my consultant to tell me the CT scan showed not only an anomaly in mt colon but also my liver. The floor fell from my feet as if it was in two places it was saft to say it was cancer, he said they needed more tests to find out for sure, so in 1 week i had a colonoscapy (finally) an MRI on my liver and a CT scan of my chest.
And now we are at the current time, im waiting for the results though i have very little hope now. I dont think i need to results of my chest scan as over the last week or 2 i have noticed i get slightly out of breath doing just about anything so i certain it is in my lungs so i now just assume its game over. I finally told my kids and parents about this after the colonoscapy as i was heavily sedated and used alot of gasened air as i was in alot of pain, and resulted in me being in a care free mood for the rest of the day so used this cheat to break the bad news to my family. Oh because of the sedation i cant acctual rember what was said about the colonoscapy other than it wasnt compleated due to narrowing in my colon, they took biopsyes and think they tattooed a part of my colon but cant remeber why they did this.
So if you read all that thank you. All this has left me angry to be honest more than anything as this cancer has gone from the doctors saying' it's fine you got nothing wrong with you' to 'you are screwed' in the space of 10 months.
Dont really know what any one can say about this, just needed to scream in to the void i guess.
My symptoms started with severe shortage of breath but they quickly told me it is more likely bowel cancer - which apparently tears up the red blood cells that oxygenate the blood, hence the breathing problems - your lungs may be fine. I'm frustrated after 5-6 weeks of not knowing exactly what I have and if it is cancer or if it is treatable or incurable. Being in such limbo for ten months as you have would be unbearable for me - hope you can be sorted out ok
Thank you for responding, i have my first meeting with my consultant on friday. I just gonna assume the worst as thats how i have always been, im really hoping its not in my lungs aswell but so far any news i have had regarding this situation has so far been the worst it could be so dont expect a change in the pattern to be honest.
again thanks for taking the time to read all that wall of text.
hope your meeting at least gives you clear answers to your concerns so you know where you stand
Hi Aydin
First of all may I welcome you to the forum, there are lots of lovely people on here who will help and support you.
I was sorry to read your post. Back in 2010 I knew there was something wrong with me, I didn’t have the bleeding but I did have other classic bowel cancer symptoms and I was sent for tests for this and that, but to cut a long story short in June 2011 I was diagnosed with Stage III colon cancer. This was over a year since I had first reported symptoms.
I was angry, but my two daughters made me realise that the past has gone, I couldn’t change what went wrong and I had to concentrate on getting through this.
During my colonoscopy I was told that they had tattooed my colon. This tattoo is done on the inside of the colon around the site of the tumour so that it can be seen through the colon wall and when the surgeon operates he knows which part of the colon to cut to get to the tumour.
When we are stressed we often get very short of breath this is quite common and is not always a sign of lung cancer, and I hope your chest scan will be clear.
When they have the results of your MRI and the chest scan they will then talk you through a treatment plan with you.
As I say, I had surgery in 2011 and chemo in 2012 and although I’ve had a few side affects, I’m still here.
Take care
VickiLynne
thank you, i thought that was why they tattoed the colon but wasnt sure.
Hi
A welcome from me too!
So sorry to read your story . It is quite dismantling to hear you have a cancer that has spread and not know all the details . You are left interpreting the gaps which is not always helpful and very unsettling.
I can only encourage you to hold on to see what your oncologist says. Bowel cancer that has spread still has lots of treatment options. My mum had a spread to her liver and was classed as inoperable but chemo turned that around . If you click on my user name you can read her full story .
She has had two liver resections , one lung resection and a bowel resection . There are other areas to look into like radio frequency ablation . My mum’s lung met had absolutely no symptoms.
There are lots of people around with cancer that has spread but continue to live for a long time with a quality of life too. My mum has been diagnosed for over 11 years .
Take care and remember you can you can ask anything here .
Court
Helpline Number 0808 808 0000
Forester42
Hi, I was very interested reading about bowel cancer tearing up red blood cells and causing breathing problems.
A couple of years before my husband was diagnosed with stage 4 bowel cancer he was told his breathing difficulties were due to "late onset asthma" and treated as such.....he never really accepted that as the cause. Mmmmm!
I used to walk around like everything was fine, but deep down, inside my shoe, my sock was sliding off.
Now I walk around and everything is fine.....one day I am going to by new socks with strong elastic......but in the meantime I am learning to stop and and pull my sock up!
Wow Googlemuma, the blood cells were the first thing they homed in on for me at the surgery - I thought it was my lungs that needed attention - guess we should never take a diagnosis for granted
I don't know if they tattooed mine or not - always tell people I have no tattoos but now not so sure lol
Hi court
Thank you for your encouraging post. I had a large bowel tumour removed last May and responded well to chemo until November. But scans this June showed metastasis to lung, abdomen and liver.
I'm now on palliative chemo but still asymptomatic and my tumours are small. Though this is now well advanced, I feel remarkably upbeat and confident that I'll be here for a few years too.
Kind regards,
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